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Chapter 1 Understanding health and health promotion

Janis Greig

Learning outcomes

This chapter will help you:

Reflect on personal and official definitions of health
Discuss common lay health beliefs and their effects on behaviour
Explain the relationship between attitudes, values and behaviours
Review the factors that influence health
Show awareness of the effects of poverty as the key determinant of health
Understand the place of health promotion in modern nursing
Describe common methods and approaches to the measurement of health
Appreciate individual responses to illness.

Glossary terms

Demography
Epidemiology
Health determinant
Health education
Health promotion
Morbidity
Mortality
Public health
Statutory bodies

Introduction

The health White Paper, Saving Lives: Our Healthier Nation (DH 1999a, Section 11.14) states that nurses, midwives and health visitors play a crucial role in promoting health and preventing illness. People have close contact with health professionals at key points in their lives – in infancy, during adolescence, pregnancy and childbirth, and in sickness and older age – creating significant opportunities for health promoting interventions.

The Code of professional conduct: standards for conduct, performance and ethics (NMC 2004) states that nurses must protect and support the health of individual patients, clients and the wider community (see Ch. 7). To achieve this, it is important for nurses to have an understanding of their own and others’ health definitions and beliefs. Apart from increased self-awareness, nurses can better understand and relate to their patients and their health and illness behaviour.

Nurses also need to know the factors that affect health and health beliefs in our increasingly multicultural society. This allows accurate assessment of care needs, the planning of sensitive care and the targeting of relevant information. The ultimate aim may be to help people change their health-related behaviour. Furthermore, the increasing focus on evidence-based healthcare means that nurses need to have an understanding of how and why health and illness are measured.

This chapter lays the foundation for the rest of the book by discussing definitions of health, models of health and illness, health beliefs, attitudes and values, factors influencing health, health promotion and health education, measuring health and illness and illness behaviour. It is important to consider the different terms used to describe people in a variety of health and social care settings. Adult, mental health, children’s and learning disability nurses use language that gives clues to their underlying values and assumptions of power and passivity about the person in receipt of care (Ch. 7):

Patient: A traditional word to describe the recipient of care. Commonly used by nurses, doctors and other healthcare workers, it may imply a relative passivity or inequality in the relationship with professionals – ‘experts know best’. It is widely used in adult nursing, child health nursing and other clinical settings within the NHS.
Client: May imply a more active recipient of care and is sometimes used in situations where a fee is charged, e.g. complementary therapies. The perception is one of greater equality in relationships with professionals rather than a medical or clinical focus. The term is widely used in social work, mental health, learning disability and other community-based settings.
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Service user or user of services: This terminology is commonly used in mental health and learning disability work but is becoming widespread in other settings. It may at first seem to be a more neutral phrase than ‘patient’ or ‘client’, more accurately describing a person in relation to the services received rather than reflecting issues of passivity or power. However, it is also a political statement. For example, people with mental health problems may define themselves this way and, by so doing, reject the medicalization of their experience and situation, including the mental illness diagnosis. They may prefer to use the word ‘distress’, rather than the diagnostic label given. Even more radical is the use of the term ‘survivor’ to describe a person’s experience of mental health services.
Resident or tenant: A term which may be used in care of older people. Workers in care homes in the community often use this word to describe recipients of their care, whether it is health or social care.

Definitions of health

Before reading this section you should undertake the activity in Box 1.1.

Box 1.1 imageREFLECTIVE PRACTICE

Your view of health

Student activities

1. Think about your own view of health and write down your own personal definition, or even just some key words.
2. Compare your ideas with those of a friend or co-worker and discuss any similarities or differences.
3. Ask yourself:
What attributes might a healthy person have?
What would a healthy person look like?
Have you always defined health in this way or has it changed since you were a child?
Do you think this might change in the future?

The word ‘health’ is derived from the old English word hael meaning whole and, despite being the subject of much research, it cannot be neatly defined. There is no universal definition of health as everyone has their own idea of what it means. When asked to define ‘health’ in class or during research, people may highlight the physical functioning of their body, their ability to carry out tasks, feeling content and happy or even respond in terms of relationships with family and friends. In other words, health is multidimensional, composed of different but interrelated dimensions.

Dimensions of health

Six dimensions of health are usually described, five at an individual level surrounded by a further one at the level of society:

Physical – body shape, size, function
Mental – or intellectual health; means the ability to think clearly and coherently, making rational judgements
Emotional – or affective health; means the ability to recognize emotions, adapt to and cope with stress and anxiety
Social – the ability to make and sustain relationships with people
Spiritual – relates to personal beliefs and behaviour, being content or at peace and may include religious beliefs and practices
Societal – relates to everything surrounding a person in their immediate or wider environment, including working and living conditions, employment, income, social norms and the political context.

The dimensions of health are interrelated and problems in one area may well affect another. A social dimension issue, e.g. a relationship problem, may cause mental health problems. A person with a chronic physical illness may develop an accompanying mood or emotional problem. Societal issues such as poverty and low income determine people’s diet and lifestyle, affecting their physical health. It is important to recognize that the relatedness of the dimensions is so strong that it is artificial to try discussing them as separate issues (Box 1.2).

Box 1.2 imageREFLECTIVE PRACTICE

Dimensions of health

Student activities

Look back at the six dimensions of health:

From your own life, identify examples of how problems in one dimension may impact on another.
2. Do the same again, but this time thinking about patients/clients you have met in placements.
3. Consider the following situations and suggest the dimensions in which the individual may have problems:
A 35-year-old married woman with postnatal depression
A 54-year-old man who has been made redundant
A 14-year-old boy undergoing treatment for cancer
A 78-year-old widow living on minimum benefits.

Holistic health

Nurses applying this multidimensional approach to healthcare need to assess all aspects of health and consider each patient/client as a whole person (see Ch. 2). This is called a holistic approach and derives from the Greek word holos meaning whole. Kerr (2000) reminds us that a holistic approach to nursing care is based on ancient beliefs that the spirit is a legitimate focus for nursing care as much as the body.

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The body as a machine

During assessment interviews or other interactions with people, it is common for nurses to hear descriptions related to the physical dimension of health, where anatomy and physiology are described in an oversimplified way, comparing the body to the workings of a machine. This is called mechanistic functioning and descriptive words commonly used include pipes, blockages, tubes, plumbing, waterworks, ticker and pump. This type of comparison is also used by people to describe the workings of the mind or brain, using words such as wheels or cogs turning, whirring, ticking or breakdown. You should now try the activity in Box 1.3.

Box 1.3 imageREFLECTIVE PRACTICE

The body as a machine

Lay people sometimes describe anatomy and physiology of the mind or body as if it is a machine.

Student activities

Do you use this terminology yourself?
If so, think of examples of the words or phrases used.
Next time you are interacting with people in a practice placement, listen for examples of mechanistic functioning.

The continuum of health

Figure 1.1 shows how health can be viewed positively or negatively with extremes of positive and negative health states at opposite ends of a health continuum. This reflects the reality that health is much more complex than merely ‘I’m ill’ or ‘I’m not ill’. The continuum allows for movement along the line, reflecting the dynamic nature of health, which varies over time, with age and stage of development and changing circumstances.

image

Fig. 1.1 Health as a continuum

Mental health as a continuum

The idea of a single continuum may be seen as unhelpful in mental health. Some people experience high levels of well-being as a symptom of mental illness. For example, a person may experience elation arising from a bipolar mood disorder and would report feeling ‘great’. Tudor (2004) describes the use of the two continua concept where one axis represents mental health and well-being and the other mental ill-health.

Positive and negative health

Words indicating positive health imply the presence of positive and additional qualities such as fitness, wellness or well-being. The positive aspect of health tends to be less dominant, with a tendency to describe health states in a negative way, not focusing on positive health but instead on the absence of disease. For example, describing health as being free from the symptoms of illness or not having a medically defined condition – ‘I don’t have any major illness so that means I’m healthy’. Words indicating negative health states include disease, illness, deformity, abnormality, ill-health, injury, disability, handicap, mental distress or disorder.

It is interesting to note the large number of words used to indicate negative health compared to the few describing positive health states – wellness, well-being, fitness. The word ‘disease’ tends to be used in an official way by doctors, nurses and others for physical conditions with observable physical changes. However, like health, illness cannot be easily defined and is often described as a subjective experience, personally defined by each individual.

WHO definitions of health

The most well-known definition of health is that of the World Health Organization (WHO 1946): ‘Health is a state of complete physical, mental and social well-being and not merely the absence of disease or infirmity.’

This definition has many strengths and it:

Is historically important
Was written in the post-World War 2 optimism of 1946
Was one of the first authoritative attempts to define health and was proposed by a prestigious international agency
Promotes a positive view of health by mentioning well-being
Is a holistic definition, including different dimensions of health
Can be seen as an idealistic target to aspire for – health as an ideal state.

However, it has been widely criticized. Some of the criticisms centre on the word ‘state’ which implies a lack of change and does not fit with modern views that health is dynamic, changing with life circumstances. The word ‘complete’ seems to make this an absolute statement and one which, although idealistic, is unrealistic and unattainable. Lastly, the authority of the WHO to define health has been questioned, as it is acknowledged that everyone has their own definition.

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Although the original 1946 definition is still commonly quoted, the World Health Organization amended their definition of health in the Ottawa Charter (WHO 1986) to:

Health is the extent to which an individual or group is able to realize aspirations, to satisfy needs, and to change or cope with the environment. Health is, therefore, seen as a resource for everyday life, not the objective of living. Health is a positive concept emphasizing social and personal resources, as well as physical capacities.

The 1986 definition remains valid today and is considered to be realistic in comparison to the unattainable ‘ideal state’ of the earlier definition. This definition focuses on health as enabling adaptation to change and emphasizes the dynamic nature of health, the importance of social aspects of health and the link between health and economic productivity. The WHO definitions of health (1946, 1986) are only two of many, and Seedhouse (2001) summarizes the vast range of health definitions into four major groups (Box 1.4).

Box 1.4 Theories of health

[Adapted from Seedhouse 2001]

1. Health as an ideal state – the most well-known example is the WHO (1946) definition of health.
2. Health related to physical/mental fitness and role/function – health allows people to carry out normal daily tasks.
3. Health as a commodity – underlying medical practice, health is seen as an external entity which can be given or even bought.
4. Health as a personal strength or ability – health is seen as related to innate or developed strengths, which can be physical or intellectual. It is possible, in this theory, to be ‘healthy’ even if disabled or suffering from a disease, illness or social problem.

Defining mental health

Mental health problems are widespread in society (see Box 1.5). Despite these problems being so common, there is a lack of awareness about mental health among the general public and perhaps even among health professionals. Check your awareness of mental health by carrying out the quiz in Box 1.6.

Box 1.5 UK mental health – what are the issues?

The Choosing Health consultation (DH 2004) showed that:

1 in 6 adults at any one time has a mental disorder – as many as 9 million people in the UK
1 in 10 children under the age of 15 years has a mental health disorder, as do 45% of children and young people looked after by local authorities
Up to 1 in 4 consultations with a GP are concerned with mental health
Up to 670000 people in the UK have some form of dementia
500000 people in the UK consider they are experiencing serious work-related stress
Suicide has strong links with mental health and is increasing in young people aged 15–19 years, especially males
Adult male suicides hit a 30-year low in 2003, having reduced steadily since 1998 while adult female suicides have remained steady. Males account for 75% of all suicides
Mental health problems are strongly linked to social inequality, e.g. urban deprivation, low household income and unemployment.

Box 1.6 imageCRITICAL THINKING

[Resource: Alexander A 2001 Mental health awareness quiz. Napier University, Edinburgh (unpublished)]

Mental health awareness quiz

Student activities

The quiz is designed to test your knowledge of mental health and to help you think about your attitudes to people with mental health problems. Circle your response to each question.

People with schizophrenia have a split personality. TRUE/FALSE
2. You cannot recover from a mental illness. TRUE/FALSE
3. Most people who have a mental illness end up in hospital. TRUE/FALSE
4. One-third of all absences from work are due to emotional distress. TRUE/FALSE
5. You can always tell if a person has had a mental illness. TRUE/FALSE
6. People are born with a mental illness. TRUE/FALSE
7. There is no point speaking to someone with a mental illness about their problems. TRUE/FALSE

Go to the MIND (National Association for Mental Health) website (www.mind.org.uk) and find out more about the mental health issues raised above.
Answers: 1. F; 2. F; 3. F; 4. T; 5. F; 6. F; 7. F.

Mental health problems may be the most common reason for people visiting their GP yet mental health remains difficult to define. It is common to define mental health subjectively, i.e. as something each person defines individually. Barker (2003, p. 7) says that ‘mental illness and mental health … possess no clear, accepted definition. However, they are used in everyday conversation as if their meaning is unambiguous’. Mental health can be taken to mean the opposite of mental illness or even a state of well-being.

It is interesting to note that there is no WHO definition of mental health or mental illness. Instead they use the term mental disorder, which implies a clinically recognizable set of symptoms or behaviour associated in most cases with considerable distress and substantial inter-ference with personal functions.

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Many authors have tried describing mental health as one or more of the following:

Living happily
Having good self-esteem
Being able to relate well to other people
Having a sense of self and identity
Living productively
Autonomy
Maturity
Coping effectively with stress
Problem-solving
Adapting to change (Seedhouse 2002).

The Department of Health (2001a) describes the importance of mental health and well-being to overall health and productivity and defines mental health as:

Essentially about how we think and feel about ourselves and others and how we interpret the world around us. It affects our capacity to communicate and to form and sustain relationships.

Lay and professional definitions of health

Lay definitions of health refer to the ideas, beliefs and opinions of ordinary members of the public. Studies into lay people’s definitions of health show that people perceive that health can coexist with even serious disease. It is only the last group of theories in Box 1.4 that allows for this, the first three groups must have absence of illness and disease. Professional definitions of health arise from people ‘educated in health’ such as nurses, doctors, allied health professionals (AHPs) or from official sources, e.g. government experts and agencies. Lay and professional definitions of health vary considerably and may result in differing expectations, lack of understanding or even conflict in issues of relationship, diagnosis, treatment and care. Box 1.7 shows an example of lay and professional conflict.

Box 1.7 imageCRITICAL THINKING

Lay and professional conflict

Jim is 28 years old and has a history of mild asthma going back to childhood. He has had several episodes of bronchitis in the past which have always responded well to treatment with antibiotics. He smokes 30 cigarettes a day.

Jim visits his practice nurse with a heavy cold and a sore throat and requests a prescription for antibiotics. The practice nurse explains that since his cold is caused by a virus, she will not advise antibiotics. Instead she starts asking about his smoking habits.

Student activity

After reading the scenario above, identify:

How Jim might feel about his request being denied and how he may react to this
What the practice nurse may be thinking
The differing expectations within the consultation
The possible effects of any conflict on the future relationship.

Models of health and illness

The word ‘model’ has many meanings but in the study of health and illness refers to a conceptual framework or a perspective, a way of viewing or thinking about health and illness which informs research or practice (Seedhouse 2001). The implication is, therefore, that there may be as many different models in this area as there are different ways of thinking about health and illness. The most common models of health and illness are medical, social and patient-centred.

The medical model

Many health professionals ascribe to the medical model, also known as the biomedical model, which tends to focus on illness rather than health. It has tended to be dominant, although this is now changing. The medical model is underpinned by the growth of scientific thinking, technological progress and research that has developed from the 18th century to the present day. The focus is on being objective when identifying physical problems.

Observed symptom clusters lead to diagnosis, which in turn determines treatment options. Cure and repair are emphasized, with treatment often involving drugs or surgery. The intention is usually to remove the identifiable cause of the problem, returning the patient to a ‘normal state’. The medical model assumes that a diagnosis is not valid unless made by expert practitioners. A further assumption is that patients are relatively passive during the process.

Mental health language and the medical model

Foucault (1973) believed that use of language is crucial in determining the way people think and therefore that there could be problems in the use of medical model terminology in the areas of mental distress or mental health problems. The phrase ‘mental illness’ tends to reflect the medical model, which is neither accurate nor helpful when applied to problems that are often largely social or behavioural. Even use of the adjective ‘mental’ has been criticized as it relates to the mind rather than to the brain or even to abnormal behaviour where many problems might manifest. It is more accurate to use the term ‘mental distress’ which fits with modern thinking and is usually preferred by clients.

The social model

Whereas the medical model tends to focus on causes of illness within the individual, the social model considers the society in which the individual lives. This approach arose in the 19th century from the idea that improved health comes from improved environmental and living conditions, e.g. better housing, public health programmes and improved sanitation. The language of the social model is not of symptoms but instead uses terms including barriers, exclusion, distress and disability.

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The patient-centred model

Yet another view of health and illness is the patient-centred or client-centred model. It derives from Carl Roger’s (1951) work on person-centred therapy and is a dominant model in modern healthcare, especially in mental health, learning disability and complementary therapies. Of key importance in this approach is the patient’s own perception of their physical or psychological health. This forms the starting point for a more equal, negotiating type of relationship, with the potential for more holistic assessment. This approach is based on the premise that people have significant and unique knowledge of their own symptoms or problems from which healthcare professionals can learn.

Expert patients

The belief that patients can develop successful strategies for coping with symptoms forms the basis of the Expert Patient Programme, a training scheme delivered by the NHS in England since 2004.

The aim is to provide opportunities for some of the 17.5 million adults living with a long-term health condition to take more control over their health. In effect, to become expert patients by understanding and managing their condition better and thereby improve their quality of life (DH 2001b). The programmes involve attending a series of classes based in primary care settings to learn about issues such as symptom management, medication, relating to health professionals, community resources and stress management. You can find out more about expert patients by carrying out the activities in Box 1.8.

Box 1.8 imageREFLECTIVE PRACTICE

[Resource: Shaw J, Baker M 2004 ‘Expert patient’ – dream or nightmare? The concept of a well-informed patient is welcome, but a new name is needed [editorial]. British Medical Journal 328:723–724]

‘Expert patient’ – dream or nightmare?

Student activities

1. Locate the article below and, from your reading, answer the following questions:
Why do some health professionals criticize the idea of expert patients?
Why would some health professionals prefer the use of other names such as autonomous patient, resourceful patient or involved patient?
2. Ask a patient/client to tell you about their health problem and how it affects them.
3. Consider how you would feel about providing care for people that know more about their condition or treatment than you do?

Health beliefs

Interpersonal relationships are often seen as the central role of nurses (see Ch. 9). It is therefore essential that nurses are aware of, and understand, the beliefs and perceptions of their patients/clients to facilitate relationship forming. Nurses need to have an informed understanding of the diversity of health beliefs because of their significant position as ‘intermediaries’ between medical and lay belief systems, acting as translators of patient/client experience to doctors and vice versa. To accomplish this, nurses need sensitivity to people’s subjective experience of illness and an open-mindedness regarding the limitations of the medical approach (Jones 1994). Contemporary health beliefs are better understood by briefly considering how they have developed over time.

Early health beliefs

Early health belief systems date from 3000bc. The orthodox Chinese system, Ayurvedic medicine and ancient Greek/Roman civilizations were among the first to have a written, systematic categorization of illness for the purposes of diagnosis and treatment. All had ideas of systems in balance or harmony, were person-centred, holistic and made links between health, illness and the individual’s personality, the climate, stage of lifespan and the environment.

Although these belief systems seem like ‘ancient history’, it is important to note that orthodox Chinese and Ayurvedic medicine are still practised by millions of people throughout the world. In general, non-Western ideas of health are becoming increasingly common in UK society. Chapter 10 provides more information about the emergence of complementary therapies.

Religion and health

There has been a long and enduring link between religion, moral behaviour and health. The central idea is that illness may be caused by moral failure or some lapse in good behaviour. There is also the notion that the person may ‘deserve to become ill because they have brought it on themselves through their own actions’ (see Box 7.5, p. 171, for a contemporary example that explores withholding treatment for smokers).

The Latin word for pain, poena, comes from the same root as the word for punishment and the Bible describes pain in childbirth as punishment for Eve’s sin in the Garden of Eden. The idea of illness as punishment for moral failure may seem very old-fashioned yet it is still a commonly held belief in current society (Jones 1994). This kind of thinking about ‘deserving’ illness or being punished for bad behaviour by becoming ill is the norm for children of primary school age. Children’s views of health and illness are considered later (p. 10).

From research into lay people’s health beliefs, it is common to hear phrases like ‘You get what you deserve, people bring things on themselves’ or ‘It’s in God’s hands, everything is for a reason’. Helman (2000) also notes that one common image often used in the press is of acquired immune deficiency syndrome (AIDS) as moral punishment, with sufferers divided into two groups: the ‘innocent’ (children and people with haemophilia) and the ‘guilty’ (everyone else).

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Supernatural ideas and health

Centuries ago, when illness arose for no apparent reason, people sometimes believed that someone had wished them harm by thought, the casting of spells or giving of the evil eye (Helman 2000). Belief in special powers and witchcraft were very common in ancient times but are still held by many people in the UK today, especially as its population becomes more culturally diverse. Large numbers of British people, e.g. those of Afro-Caribbean descent, still hold these beliefs. It is therefore important for student nurses and other healthcare professionals to be sensitive to cultural aspects of health belief and related behaviour (Box 1.9).

Box 1.9 imageREFLECTIVE PRACTICE

Culture and nursing practice

Cultural background has an important influence on many aspects of people’s lives, including their beliefs, behaviour, perceptions, emotion, language, religion, rituals, family structure, diet, dress, body image, concepts of space and time, and attitudes to illness, pain and other forms of misfortune – all of which may have important implications for health and healthcare.

(Helman 2000, p. 3)

Student activities

1. Read the quote above and reflect on your personal or clinical experience.
2. Try to think of examples of diversity in clients’/patients’ beliefs and behaviours which you have encountered in practice, e.g. in relation to:
Family roles and involvement
Gender roles, clothing and privacy
Personal hygiene practices
Dietary habits.

Strong supernatural beliefs may result in people having feelings of not being fully in control of their own destiny. In some circumstances, this can lead to a type of fatalism, especially if the person believes in an afterlife or in reincarnation. This is a major issue for health promoters as some people may not value the need to change their health behaviours or lifestyle.

Scientific developments and health

From the 18th century onwards, there was rapid development in scientific knowledge accompanied by technological advance. The emphasis was on research, evidence and objectivity and the beginnings of the medical model are based here. The medical model remains the most common professional view, with its current focus on evidence-based practice (see Ch. 5).

By the 19th century, there were two main models of health and illness: contagion and miasma. The contagion model stressed that the causes of illness were through contact or touch, magic, diabolism, lack of discipline and moral control. This was the dominant model until the ‘germ theory’ emerged. Again, although historical, some people still hold notions of contagion in today’s society, e.g. people of strong religious faith, minority ethnic groups.

The miasma model, as espoused by Florence Nightingale in her Notes on Nursing of 1859, centred on belief systems which considered that illness was caused by bad air or smells, poor atmospheric conditions, rotting food and sewage. It followed then that the treatment of illness involved personal and environmental cleanliness, usually involving fresh air, scrubbing, boiling and bleaching. It is still common these days to hear people voice miasma concerns which tend to be about dampness in the air or cleanliness.

Throughout the 20th century and up to the present day, the medical model has grown and remains dominant. Secularization of beliefs has increased so that, for most people, illness tends not to be linked with either moral failure or religious belief. Non-Western notions of health are common, with an increasing interest in, and rise in the use of, complementary therapies (see Ch. 10). All of these advocate holism by stressing that illness is of the whole self, not merely a problem in an aspect of body function. Complementary therapies are now embedded in many mainstream NHS settings.

Current lay health beliefs

The trend is towards a huge diversity of health beliefs in the UK, which is increasingly multicultural. It is therefore inevitable that nurses will care for people with beliefs that are different from their own. The concept of balance or moderation remains common in modern health beliefs and is often expressed as the idea of trade-off, where individuals regulate their behaviour, e.g. ‘I walked to work today so I can have pudding for lunch.’

Categories of lay health beliefs

There is a multitude of common health beliefs noted in this intensively studied area. Blaxter (1990) studied the health beliefs of lay people and observed that these changed according to age, gender, family responsibilities and cultural background. She found young men tended to emphasize physical fitness and function whereas older adults described health as linked to social and emotional relationships. Blaxter (1990) summarized lay health beliefs into 10 categories:

1. Health as never thinking about being healthy or ill
2. Health as behaviour, the healthy lifestyle
3. Health as not ill, not going to the doctor
4. Health as social relationships
5. Health as absence of illness
6. Health as ability to function, to carry out tasks
7. Health despite disease
8. Health as energy or vitality
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9. Health as a reserve of strength
10. Health as psychosocial well-being.

Box 1.10 provides an activity to help you recognize common, contemporary health beliefs.

Box 1.10 imageCRITICAL THINKING

[Adapted from Greig J 1995 Men talking about health: a qualitative study. Unpublished MSc thesis, Edinburgh University]

Recognizing health beliefs – quotes about health and illness

‘I think that babies should get aired every day – fresh air in all weathers.’
‘I smoke, have asthma and bronchitis for which I need inhalers, I’m overweight and am partially deaf in one ear but overall I would say that I am healthy.’
‘I am healthy, I can always manage to get to work.’
‘I really think if you’ve got to go, you’ve got to go. It’s all mapped out you know.’
‘I can do everything I need to do, earn money, look after my family – to me that’s real health.’
‘I’m very healthy, I’ve got great family and faithful friends.’
‘He lived until he was 89, mind you he was from sturdy stock, they were all long-lived in that family.’
‘Her son was disabled and her husband left her but she just got on with it, she never made any fuss and coped with everything.’

Student activities

Read the quotes above from lay people expressing their own ideas about health and illness and try to identify what type of belief is being expressed. It may help to look back at Blaxter’s 10 categories of health beliefs, the Seedhouse groups of health definitions and the section on history of health beliefs.
Next time you are on placement, listen for lay health beliefs expressed by patients/clients.

Lay beliefs about the causes of illness

The study of lay theories of illness causation, also known as lay aetiology, refers to people’s attempts to make sense of their own or family experience of illness or disease. They try to describe what has happened to someone and why. Jones (1994) described humans as natural scientists, with an innate drive to understand and ascribe meaning to the world around them. However, lay people usually have limited scientific understanding of the structure and functioning of the body, the causes of disease and the reasons for body malfunction. They may hold logical but incorrect assumptions about the cause of illness (Helman 2000), e.g. cold (temperature or weather) causes a cold (viral infection).

Like the medical model, lay theories of illness are multifactorial, placing the causes in one of the following four sites: within the individual, in the natural world, in the social world or in the supernatural world (Box 1.11). The first two explanations relate to the Western industrialized world while the last two usually arise from non-industrialized or rural communities (Helman 2000).

Box 1.11 Lay beliefs about the causes of illness

[Adapted from Helman (2000)]

Individual level theories: Emphasize malfunction within the body. Causes of illness tend to centre on notions of vulnerability, resistance, wear and tear, hereditary predisposition, imbalance and mechanical damage or blockage
Natural world theories: Seek explanation in climatic conditions. Causes of illness typically centre on air quality and seasons, microorganisms which are commonly described as insects (e.g. tummy bug), astrology, accidental injuries, parasites and environmental irritants
Social world theories: Tend to blame other people, emphasizing interpersonal conflict, witchcraft, sorcery, ‘evil eye’, spells, potions, rituals
Supernatural world theories: Seek explanation in gods, ancestors or spirits. Illness is seen as a reminder for a lapse in behaviour. In industrialized settings, individuals are more likely to blame fate, luck or Acts of God.

Children’s health and illness beliefs

There is distinctive progression in children’s understanding of health and illness-related concepts with age. Children’s understanding corresponds to their stage of cognitive development, using Piaget’s theoretical framework as comparison (see Ch. 8). ‘Draw and write’ techniques are commonly used to explore children’s health perceptions and, by the age of 6, children may have already developed distinct ideas about the causes of health and illness.

Preschool children see illness occurring as if by magic and sometimes perceive it as punishment for past misconduct and may even believe that healthcare professionals intentionally set out to hurt them (Hart & Chesson 1998). They know the names of some external body parts but internal bodily functions remain largely unknown.

Children aged 6–7 years tend to have a view of health which describes healthy people as being young, sporty, happy, smiling and actively involved in outside activities (Kerr 2000). In this age group, children may believe that illness is caused by a single factor, often a germ (Hart & Chesson 1998). They are familiar with the names for external body parts and some internal organs and bodily functions. Little is known about children’s concepts of mental health, other than feelings related to being happy or sad.

Children aged 9–10 years understand the principles of germ transmission but many believe that all illness is caused this way, even cancer and eczema (Hart & Chesson 1998). Given this, it follows that they sometimes have difficulty in understanding prescribed treatment. Perrin and Gerrity (1981) noted that medical terms were frequently misinterpreted by children, giving examples of oedema perceived as ‘demon in my belly’ and diabetes perceived as ‘die of betes’.

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Children aged 11 years have begun to develop a more detailed understanding of health and illness and by 13 years grasp the complexity of illness with its multiple possible causes. They are able to discuss the complex interplay between biological, lifestyle and environmental factors that influence health and illness (Helman 2000). They can readily identify health determinants (see p. 14) and understand health-damaging behaviours such as passive smoking (Kerr 2000). They have studied at school and can relate, for example, aspects of body functioning to the components of a healthy diet. They are also more likely to appreciate the impact of psychological factors, grasp the notion of drug-related side-effects and the time delay often experienced in response to treatment (Hart & Chesson 1998), e.g. it may take several days before anti-biotic medicine is seen to ‘work’.

In all age groups, the most common symptoms described as ill-health by children were fever, headache, diz-ziness or rash (Helman 2000). Thermometers feature strongly in children’s ‘draw and write’ descriptions. Children perceive fever to be the key symptom used by their parents to determine whether or not they are ill. This reflects their own experience, which is usually limited to common illnesses of childhood such as viral infections.

It is also noteworthy that, unlike adults, positive aspects of illness feature strongly in children’s drawings and descriptions of being ill. These include staying off school, being the centre of attention, having visitors, treats and special foods.

Becker’s health belief model

There are many health belief models that provide an overview of the factors influencing health beliefs. One is the health belief model (HBM) devised by Becker (1974) to explain how people behave in relation to their health. A person’s beliefs about whether they are likely to contract an illness and the degree to which they see an illness as being severe can be considered as a perceived threat and is the basis by which their behaviour is influenced. The HBM (Fig. 1.2) has been shown to be highly predictive of health behaviour.

image

Fig. 1.2 Becker’s health belief model

(reproduced with permission from Naidoo and Wills 2000)

According to the HBM, participation in preventative health behaviour, i.e. behaviour which should decrease the risk of illness, is predicted on the basis of the following:

How an individual perceives their susceptibility to a given disorder – what is the likelihood of being affected?
How an individual perceives the seriousness or severity of the disorder – how bad would it be?
How an individual perceives the benefits of taking action – what will be gained?
How an individual perceives the barriers to action – how hard is it to change, what will be lost?
The individual’s experience of cues to action – what has been seen or heard which triggers health behaviour action, e.g. GP advice, a health scare or major life event
Health motivation – how highly a person values health.
  Page 12 

Values in health are discussed below and Chapter 7 considers values and ethics in nursing practice. Originally, the HBM had four key beliefs affecting the central concept of health motivation. Later, the HBM was extended to include the fifth key belief: perceived self-efficacy, which refers to a person’s confidence in their ability to make/maintain a change in health behaviour. Modifying factors may include sociocultural factors, age and gender. It suggests that people will consider the advantages and disadvantages of engaging in positive health behaviour, even if the existing behaviour is not changed, and relies on a particular cue for action to be taken.

The nurse’s role and application of the HBM

Nurses can help people to change their health behaviour in many ways. It is important to realize that any contact with health professionals, however brief, is often a ‘cue to action’ in itself. It is important to use this contact to discuss health behaviours – people expect it and may be surprised if the subject is not broached. Nurses and other health professionals have high credibility with patients/clients and a brief discussion may be all that someone, who has been considering positive health-related change, needs to move forward and actually make a change.

There is a need for nurses to offer factual, balanced health information that clearly indicates individual susceptibility or risk. The language and images used are important considerations, especially in children and people with learning disability. Shock tactics, moral judgements or emotive language are unhelpful and may alienate patients/clients. Interaction between nurses and patients/clients should stress not only the benefits of preventative health behaviour but also offer encouragement and strategies for dealing with barriers to change.

Attitudes, values and behaviours

This is a complex area of social psychology important in nursing and health promotion since attitudes combine aspects of people’s values, feelings and beliefs. An attitude is defined as a relatively stable tendency to respond consistently to particular people, objects or situations. The use of the word ‘stable’ rather than ‘fixed’ implies an ability of the attitude to change or be changed. An attitude represents a person’s general feelings towards someone or something. It can be negative or positive, strongly held or weak. Attitudes have three components, summarized as ABC:

A – affective component or ‘feeling’ aspects
B – behavioural aspects
C – cognitive component or knowledge and belief aspects.

Nurses are often involved in assisting patients/clients to change their health-related attitudes with the aim of causing a positive behaviour change. For example, to explore dietary issues with a person newly diagnosed with diabetes, the nurse needs to:

Allow time for them to express their feelings about the diagnosis before assessing their understanding of the symptoms and dietary changes needed
Answer any questions and explore the person’s usual eating habits at their own pace
Provide reinforcement and supplementary reading
Assess where any practical changes can be made.

To ensure success, all of this must be done sensitively and with the person as participant as possible in the interaction. Care with use of language, visual aids and the opportunity for rehearsal would be of particular benefit to people with a learning disability (Box 1.35, p. 27).

Box 1.35 imageHEALTH PROMOTION

Health education for people with learning disabilities

Gates (2003) identifies key considerations when planning health education for clients with learning disabilities. Activities should be:

Interactive and designed to meet the needs of particular clients
Conducted in an unhurried fashion, in a supportive and non-judgemental environment
Systematic in planning and delivery so that material is presented in small chunks lasting no more than 30–40 minutes
Based on everyday life, e.g. healthy eating education being reinforced during shopping trips
Planned so that repetition and opportunities to practise are provided
Provided using the appropriate level of language for each client, with suitable visual aids and other learning materials.

Student activity

Review the principles above and reflect on your placement experience with a client who had learning disabilities.

Public and private attitudes

An attitude openly expressed by a person in public is usually called an opinion. Attitudes may or may not be predictive of people’s behaviour. Publicly stated opinions may, or may not, reflect a person’s true, privately-held attitude that tends to be divulged only to trusted and close family members and friends. People may express different attitudes to researchers in an attempt to help the interaction, give a more ‘textbook’ answer or appear more acceptable. An example of this in nursing might be when carrying out an admission assessment, a person who drinks heavily may purposely underestimate their alcohol units consumed per week and describe themselves as a social drinker.

Cognitive dissonance

Festinger’s (1964) idea of cognitive dissonance is based on the three components of attitudes mentioned above. It is common for a person who knows and understands the adverse effects of smoking (cognitive component) and who has poor self-esteem because they smoke (affective component) to continue to smoke (the behaviour). This is known as smoking dissonance and is experienced as psychological discomfort or guilt because of the inconsistency that exists among the three components of an attitude.

Festinger (1964) suggested that it is usual for a person feeling this discomfort to have a drive to resolve the conflict between the different components of their attitude and therefore reduce the dissonance experienced. Cognitive dissonance therefore can be viewed as a possible precursor of a positive health-related behaviour change. If nurses or other healthcare professionals perceive a person’s cognitive dissonance, then this may be a first step along the road to attitude change and, possibly, behaviour change. Mass media campaigns may purposely seek to induce or increase dissonance for this very reason, e.g. the British Heart Foundation anti-smoking advertisements which verged on the physically revolting, using emotive images of a fatty substance oozing out of cigarettes. It is important to note that this type of mass media campaign is not understood by a large proportion of people with a learning disability (NHS Health Scotland 2004).

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Values

Attitudes are underpinned by values, which are broad and less specific than attitudes. Values underpin an individual’s ‘philosophy of life’ which are then applied to everyday life. They may relate to moral, ethical or religious issues as well as health, gender roles, family life and the environment. How much a person values their health is a key part of the health motivation section of Becker’s health belief model (see Fig. 1.2).

A person’s value system is composed of broad beliefs developed through early learning, upbringing and socialization within the family and later at school, with peers and through life experiences and work. The cultural context in which this develops is also very important.

Each value may have multiple attitudes associated with it. Although it may be possible to cause attitude change, it is more difficult to change a person’s value system as it is an integral part of their early upbringing and life experience. For example, values relating to moral conduct in life may have associated attitudes about crime and punishment, sexual behaviour, marriage and the rearing of children.

Stereotyping

Although the term ‘stereotype’ originally referred to a printing stamp used to make multiple copies, it began to be used in the early 20th century to describe the way society categorizes people by ‘stamping’ them with a set of characteristics. Stereotypes are underpinned by direct expressions of beliefs and values and may offer a shorthand way to generalize about a person or a group of people (Box 1.12).

Box 1.12 imageREFLECTIVE PRACTICE

Stereotyping

Discriminatory behaviour can result from negative stereotypes and should be avoided by nurses. It is important to be non-judgemental and form effective relationships with all patients/clients. Nurses must be self-aware and recognize stereotyping both within themselves and in everyday life. Carry out the short quiz below to find out if you hold negative stereotypes.

Student activities

1. Brainstorm words or phrases which briefly describe and summarize your mental image of the following:
Male nurses
Blondes
Cowboys
Social workers.
2. Complete the sentences below and then ask yourself where you ‘learned’ this:
Everyone over 65 is …
Women drivers should …
People with red hair are …
3. Now look back at your answers and consider what forms of discriminatory behaviour could result from these stereotypes.
4. Next time you watch TV or read a newspaper, look out for perpetuated stereotypes. Is this different in different types of newspaper?

It may seem natural to try to classify people in society but stereotypes are to be avoided in nursing because they do not acknowledge individual differences and are usually oversimplified and negative. Stereotypes form the basis of prejudice, or unfavourable opinion, formed against a person or group of people, usually based on the following characteristics:

Age
Gender
Mental or physical disability
Occupation
Race
Religion
Nationality.

Fear of the unknown, e.g. of minority groups, may fuel stereotypes. When people are judged on stereotypes and there is resulting prejudice, this is known as discrimination.

People with mental health problems have historically suffered serious discrimination and can be considered one of the most socially excluded groups in British society. Public fear of mental illness has been fuelled by well-publicized cases in the media where a mentally distressed person has behaved violently. However, two-thirds of all media reports on mental health issues portray a direct association between mental distress and violence. This shows how stereotypes are often untrue because, statistically, people with mental health problems are no more likely than anyone else to engage in violent behaviour. In addition, data show that people with mental distress are much more likely to harm themselves than other people. Discriminatory behaviour includes:

Ignoring or avoiding people
Abusive language, especially ‘jokes’
Dehumanizing slang
Name-calling
Excluding behaviour such as restricted membership of clubs and societies
Lack of equal access to jobs or promotion.

The result can be segregation and isolation for individuals and, in extreme cases, discrimination is expressed as physical violence.

Discriminatory behaviour which targets children is referred to as bullying and, increasingly, this term is also used by adults in the workplace. Bullying is a common form of discrimination with 51% of primary school children and 28% of secondary school children reporting some experience of being bullied (DfES 2003). Bullying refers to deliberately hurtful actions, encompassing a broad spectrum of behaviours. In the case of children, name-calling is the most common type of bullying but other behaviours include teasing, rumour-spreading, theft of possessions or money, abusive text messages or emails, coercion, being excluded or ignored in play, class, sports and other activities or physical threats and abuse (Childline 2004) (see Box 1.13).

Box 1.13 Bullying and children

[Adapted from Department for Education and Skills (2003) and Childline (2004)]

Vulnerability to bullying often relates to physical and individual characteristics such as body shape, size, physical disability or learning difficulty such as dyslexia
More than 20000 children in the UK call the telephone helpline ‘Childline’ each year about bullying; 20% say that the current ‘tormentor’ is a former friend
Bullying causes shame, humiliation and fear. It can also cause feelings of powerlessness and low-self-esteem which can last into adulthood
Concentration problems and increased school avoidance can lead to behavioural problems and deterioration in academic performance
In some cases, children may attempt self-harm.
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Lifestyle, health behaviours and locus of control

In relation to health, lifestyle means health-related behaviours over which a person has some choice. These include:

Sexual health practices
Tobacco use
Alcohol use
Diet
Exercise
Non-prescribed or recreational drug use
Stress management
Use of preventive health services.

Becker (1974) described adaptive health behaviour as being either preventative health behaviour or sick role behaviour. Examples of preventative health behaviours include exercising, not smoking and eating a healthy diet; sick role behaviours include seeking medical help, using services and complying with treatment (p. 33).

The term ‘internal locus of control’ is used to describe the beliefs held by some people that they have the power to make health-related choices, and to influence and control their health behaviour. In short, the individual feels and believes that they are ultimately responsible for their own health. Other people demonstrate an external locus of control where they see outside factors controlling their health and health behaviour, with the tendency to blame luck, fate, God, the climate or the environment. You may hear people say things like ‘If the bullet’s got your name on it …’ or ‘If you’ve got to go, you’ve got to go’. These are examples of fatalism and evident in some of the quotes in Box 1.10 (p. 10).

It is arguable whether everyone is equally free to make meaningful health-related choices. Some people are severely constrained by issues such as income, education, knowledge and peer group pressure. For example, on a very low income it is hard to afford a healthy wholemeal loaf rather than the cheaper, and less healthy, white alternative.

Factors influencing health

Factors that influence or determine health are called health determinants. The same factors that determine health also determine ill-health, and each determinant may have either positive or negative effects on health, e.g. housing. Positive health effects related to housing as a health determinant include warmth, space, comfort, well-being and psychological security. Negative aspects of housing as a health determinant are well documented and include overcrowding, noise and safety concerns leading to stress and depression, and dampness and mould resulting in physical illness, e.g. asthma.

Determinants are many, varied yet interrelated and are described by Dahlgren and Whitehead (1991) as being on five levels. The multifactorial view shown in Figure 1.3 illustrates health determinants as layers surrounding a core and allows differentiation between individual and sociopolitical factors. The core factors – gender, ethnicity, age and heredity – are inherited characteristics and largely fixed, while the surrounding layers of influence may be open to some modification. The next layer is individual lifestyle where personal behaviours may not be rationally or voluntarily chosen, but are heavily influenced by family, friends and peer group, and by social and community networks. Wider influences on health include:

Living and working conditions
Issues related to housing
Access to health services
Clean drinking water and sanitation
Work environment or unemployment
Access to education
Agriculture and food supply.
image

Fig. 1.3 The main determinants of health

(reproduced with permission from Naidoo and Wills 2000)

It is important to note that these wider determinants are not open to action by individuals but need collective action at the level of government. For example, although individuals can play their part in environmental issues in a small way – by choosing environmentally friendly cleaning products and adopting recycling behaviours – it requires policy, legislation and action at national and international levels to achieve positive changes in some health determinants, e.g. water and air quality.

The outermost layer contains the socioeconomic, cultural and environmental conditions prevalent in society including interest rates, unemployment rates and political stability. Access to health and social services is a major determinant of health and one attempt to address this is the Children’s National Service Framework (DH 2004). This is a 10-year programme intended to promote fair, high-quality, integrated health and social care from pregnancy to adulthood. There are three parts: Part 1 provides core standards for all children and young people (Box 1.14); Part 2 contains standards relating to those with illness, complex needs or mental health and well-being needs and those in hospital; Part 3 covers maternity services.

Box 1.14 Children’s National Service Framework (DH 2004) Part 1: Five core standards

Standard 1. Promoting health and well-being, identifying needs and interventions

The health and well-being of all children and young people is promoted and delivered through a coordinated programme of action, including prevention and early intervention wherever possible, to ensure long-term gain, led by the NHS in partnership with local authorities.

Standard 2. Supporting parents

Parents or carers are enabled to receive the information, services and support that will help them to care for their children and equip them with the skills they need to ensure that their children have optimum life chances and are healthy and safe.

Standard 3. Child, young person and family-centred services

Children and young people and families should receive high-quality services which are coordinated around their individual and family needs and take account of their views.

Standard 4. Growing up into adulthood

All young people have access to age-appropriate services which are responsive to their specific needs as they grow into adulthood.

Standard 5. Safeguarding and promoting welfare

All agencies work to prevent children suffering harm and to promote their welfare, provide them with the services they require to address their identified needs and safeguard children who are being or who are likely to be harmed.

  Page 15 

Determinants of mental health and well-being

Determinants of mental health and well-being are shown in Figure 1.4. Factors influencing mental health are grouped into four spheres:

Individual
Family and community
Societal
Spiritual.
image

Fig. 1.4 The confidence spiral: determinants/components of mental health and well-being

(reproduced with permission from Kennedy 2002)

Each sphere relates to dimensions of self-esteem which together influence mental health and well-being (Box 1.15).

Box 1.15 imageCRITICAL THINKING

Mental health and well-being

Student activities

From your own experience, reflect on what factors influence your self-esteem and mental well-being positively or negatively.
Think about patients/clients you have cared for and consider the factors that are likely to influence their self-esteem and well-being.

Poverty as the key determinant of health

The most important health determinant is poverty but there is no clear consensus on how it is best defined or measured. Poverty can be defined as absolute or relative.

Absolute poverty is the inability to meet basic biological needs such as food, warmth and shelter. This relates to the first level of Maslow’s hierarchy of needs (see Ch. 8). Box 1.16 shows the UK groups most susceptible to poverty.
Relative poverty is usually defined by a comparison to a country’s average living standards, as measured by income level or ownership of certain goods, e.g. a car, or access to services, e.g. child care (Box 1.17).

Box 1.16 UK groups most susceptible to poverty

[Adapted from Gordon D 2000 Poverty and social exclusion in Britain. Joseph Rowntree Foundation, York]

People in social housing
Households dependent on state benefits
Young people aged 16–22 years
Large families, e.g. four or more dependent children
Families with children under 11 years of age
Households with no paid workers
Separated or divorced households
Women and children
Lone parent households
Adults in one-person households, including single pensioners.

Box 1.17 imageCRITICAL THINKING

A satisfactory standard of living?

Student activities

Reflect on the household items or daily activities you consider essential for a ‘normal’ standard of modern living.
Lack of car ownership is one key measure of deprivation and relative poverty. Consider how lack of car ownership might impact on day-to-day life and on health in general today.
  Page 16 

The European Anti-Poverty Network (EAPN 2003) urge that people’s own perceptions of poverty are acknowledged. However, the most commonly used official definition of poverty is living in a household with an income under 60% of the average for the country in which they live. Sometimes, this definition of poverty is further refined by deducting housing costs. This relative measure changes over time and in 2000–2001, 12.9 million people in the UK were living below this threshold (after deducting housing costs), 4 million of whom were children (JRF 2003). Box 1.18 shows the disproportionate effect of poverty on children.

Box 1.18 imageEVIDENCE-BASED PRACTICE

[Resource: Office for National Statistics 2004 The health of children and young people. Online. Available: www.statistics.gov.uk/children]

Effects of poverty

Poverty and disadvantage in childhood are key determinants of future mental health for children and young people. A tendency toward adult depression and also physical problems is strongly associated with social deprivation.

Children of low-income families:

Are three times more likely to have mental health problems than those from professional families (15% compared with 5%)
Are more likely to have low birth weights and associated developmental problems
Have higher teenage conception rates.

Student activity

Make an online search of the Office for National Statistics website (above) and find out more about low-income families and any of the following:

Low birth weight babies
Teenage pregnancy
Mental health in children
Accidental deaths in children.
  Page 17 

Relative poverty and participation in society

Relative poverty involves more than merely income; it also includes the idea that someone with a low income is unlikely to be able to participate in mainstream society. The European Anti-Poverty Network (EAPN 2003) describe the effects of relative poverty as being unable to or precluded from meeting one or more needs without outside help. These needs relate to aspects of life which enable self-determination, i.e. assuming one’s responsibilities and exercising one’s rights, or fundamental services such as education, housing and health.

Components of poverty

Poverty is complex and multidimensional, linking to fundamental issues including housing, healthcare and also to factors such as social exclusion. A combination of low pay, inadequate benefits or unemployment can lead to poverty. Low income gives rise to separate components of poverty including poverty of food, fuel, housing, transport, access to recreation/social facilities and, over time, leads to relative powerlessness. Ongoing poverty can negatively influence an individual’s physical and psychological health, with associated behavioural changes including increased use of alcohol or nicotine, sometimes called ‘drugs of comfort’. Box 1.18 highlights the links between childhood poverty and mental health.

Social class and health inequalities

Poverty has been linked to health inequalities for many years. Chadwick’s 1842 General Report on the Sanitary Conditions of the Labouring Population of Great Britain showed that richer people had a life expectancy more than double that of the poorest in society. Although life expectancy has improved steadily since then, there has not been an even improvement across social classes; inequalities still remain and may be growing.

Social class was previously categorized according to the Registrar General’s Classification of Social Class which was largely unchanged between 1921 and 2000 (see Box 1.19). People were allocated to one of five classes on the basis of the occupation of the head of the household. Although suited to men of working age, criticism of this classification centred on the exclusion of people lacking occupation, e.g. students, retired or unemployed people. Women were not included in their own right, their class being derived from that of their husband or father. Publications before 2001 use this classification.

Box 1.19 Classification of social class

Registrar General’s Classification of Social Class (used in publications prior to 2001)

Class

1. Professional
2. Semi-professional
3a. Skilled non-manual
3b. Skilled manual
4. Partially skilled
5. Unskilled

National Statistics Socioeconomic Classification (NS-SEC) (used in publications since 2001)

Class

1. Higher managerial and professional
1.1. Company directors, bank managers, senior civil servants
1.2. Doctors, barristers, teachers, social workers
2. Lower managerial and professional, e.g. nurses, actors, police, soldiers
3. Intermediate, e.g. secretaries, clerks
4. Small employers and own account workers, e.g. publicans, farmers, taxi drivers
5. Lower supervisory, craft and related occupations, e.g. printers, plumbers, butchers
6. Semi-routine occupations, e.g. shop assistants, traffic wardens, hairdressers
7. Routine occupations, e.g. waiters, road sweepers, cleaners, couriers
8. Never worked and long-term unemployed

For the 2001 census, classification of social class was revised and now the National Statistics Socioeconomic Classification (NS-SEC) is used. Eight categories were introduced to take account of changes in the labour market and the role of women. It included categories for the self-employed and those who have never worked or who are long-term unemployed. More information is available from the Office for National Statistics website.

Research into health inequalities

In 1977, the Labour government appointed Sir Douglas Black to chair a working group to review the information on health inequalities and then identify policy and research that should follow. In 1980, by the time the Black Report was due to be published, there had been an election and a change of government from Labour to Conservative. At first, the Black Report was circulated to academics in a very low-key way. It clearly showed that during the first 35 years of the NHS there had been an improvement in health across all social classes. However, there was still a strong relationship between social class and life expectancy, infant mortality and inequalities in the use of health services (Townsend et al 1992).

  Page 18 

The Black Committee recommended a comprehensive anti-poverty programme with detailed and costed targets. The two main elements were:

Fairer distribution of resources
Provision of the necessary educational and employment opportunities for active social participation.

The Black Report advocated that the key approach to tackling health inequalities was preventative work in childhood and in particular the ‘first years of life’. This has been borne out by subsequent research and remains the main emphasis in current health promotion targets. The Black Report’s recommendations were not implemented but, nevertheless, stimulated extensive research and raised the issue of inequalities around the world.

Some 20 years after the Black Report, the Acheson Report was commissioned by the newly elected Labour government in 1997 to review inequalities in health in England. It was published in 1998 and the main findings were that poor neighbourhoods are characterized by poor health. Also noted was that health inequalities still affect society and that they are cumulative from before birth to old age and that poverty has a disproportionate effect on children. The incidence of premature death was noted to be highest amongst the poor, directly linked to inequalities in income. The Acheson Report made recommendations in three main areas:

All policies likely to have an impact on health should be evaluated
High priority should be given to the health of families with children
Further improvements should be made to reduce income inequalities and raise the living standards of poor households.

Box 1.20 gives an overview of the Acheson Report recommendations.

Box 1.20 Summary of the Acheson report recommendations

Acheson (1998) made 39 recommendations that were wide-ranging and included the following:

Raising of state benefits, especially for women and children
Additional resources for schools in deprived areas
Increased employment and training opportunities
More social housing
Access to healthcare for homeless people
Free school fruit for primary 1 and 2 pupils
Affordable, high-quality day care for preschool children
A focus on the health and nutrition of women
A focus on breastfeeding
Better housing and job opportunities for minority ethnic groups.

The Acheson Report stated that individual lifestyle and personal choice were not responsible for the ‘health gap’, arguing instead that income levels, changes in society and constraints prevent individuals from choice. For example, changes in transport and shopping contributed to the creation of ‘food deserts’ – areas of social housing with no shops or services, or only one small and expensive corner shop. This makes the purchase of fresh food at reasonable prices almost impossible for some families.

  Page 19 

Unlike the Black Report which largely led to further research, the Acheson Report prompted actual policy change and engendered a climate focusing on health inequalities. Undertaking the activities in Box 1.21 will help you compare the findings of the Black Report and the Acheson Report.

Box 1.21 imageCRITICAL THINKING

[Resource: Davey Smith G, Morris J, Shaw M 1998 The independent inquiry into inequalities in health (editorial). British Medical Journal 317:1465–1466]

Comparing the Black Report and the Acheson Report

Student activities

Locate and read the following article which compares the Black Report to the Acheson Report.
Note the similarities or differences between these two milestone reports.

Changing trends in health and illness

Health and illness issues change over time. During the last century, there was a shift in the pattern of disease from infectious diseases prevalent in the 19th and early 20th centuries to chronic physical conditions and mental health issues for the 21st century (see Box 1.5, p. 6). Diabetes is one example of a chronic physical disease causing premature death and disability. In the UK, it affects 1.3 million of the population and is increasing so rapidly that by 2010 it is estimated that 3 million people will be affected (BMA 2004). Diabetes rates in children are increasing and are linked to obesity. Suicide is increasing in children and young people. The UK also has some of the worst death rates in the world for coronary heart disease (CHD), strokes (British Heart Foundation 2003), cancer and respiratory diseases. These chronic diseases are strongly linked to lifestyle factors such as cigarette smoking, poor diet, physical inactivity and excessive alcohol consumption. Strong links exist between social class and the prevalence of these risk factors, which predominate in the poorest sections of society.

Other health trends related to lifestyle include sexual health and sexually transmitted infections (STIs). The sexual health of young people in the UK is poor and linked to unsafe sexual behaviours such as unprotected sex, which has contributed to high rates of STIs and unwanted pregnancies (Box 1.22).

Box 1.22 UK trends in sexual health and STIs

[Resource: Office for National Statistics 2004 Sexual health: chlamydia rates continue to rise. Online. Available: www.statistics.gov.uk 14 July 2006]

The conception rate in all females has decreased slowly over the last 10 years except for young women aged 13–15 which has remained constant
Over half of all conceptions in women under 16 years end in a termination and this has increased slightly
During the 1980s and early 1990s, many STI rates were falling or stable, possibly reflecting changes in sexual behaviour in response to the emergence of HIV
Chlamydia is the most common STI and the number of new cases has risen steadily since the mid 1990s, doubling since 1996. There was a 14% rise in the number of cases between 2001 and 2002. The highest rates of chlamydia are in young women aged 16–19
The second most common STI is gonorrhoea with a 9% increase between 2001 and 2002.

Apart from the increase in chronic illness and lifestyle-related diseases, another important issue is the development of new communicable diseases such as Ebola virus, human immunodeficiency virus (HIV) and AIDS, variant Creutzfeldt–Jakob disease (vCJD), severe acute respiratory syndrome (SARS) and bird flu. Longstanding infectious conditions previously thought to be curable are now re-emerging and are resistant to conventional treatments, e.g. tuberculosis (TB) and methicillin-resistant Staphylococcus aureus (MRSA).

Changing issues in health and illness have focused interest in health promotion and increased government funding of initiatives. The rationale is based on the large preventable component of many illnesses, e.g. smoking and lung cancer. There is a huge potential for health gains if morbidity and mortality are reduced, e.g. publicizing the effects of passive smoking on children’s health (Box 1.23).

Box 1.23 The effects of passive smoking on children’s health

[Adapted from NHS Health Scotland/ASH Scotland 2003 Reducing smoking and tobacco-related harm – a key to transforming Scotland’s health. NHS Health Scotland/ASH Scotland, Edinburgh]

Exposure to smoking during infancy and childhood increases the risk of the following and accounts for:

10% of middle ear infections in children
15% of lower respiratory tract infections
25% of wheezing
20–50% of sudden infant death syndrome.

In addition, exposed children may also experience reduced lung function and impaired physical growth and academic attainment compared to children of non-smoking mothers.

The ‘greying’ of the population refers to a growing elderly population with an associated shift from acute to chronic illness. Older adults often have several, concurrent illnesses, known as ‘multiple pathology’. This situ-ation has been described as living longer, but not healthier. Chronic illness and multiple illnesses mean a changing emphasis on ‘care’ rather than ‘cure’.

The health needs of people with a learning disability are also changing because of increasing life expectancy and the increasing trend for more people with very complex health needs (NHS Health Scotland 2004).

The huge and growing financial cost of inpatient care, compared to health promotion funding, makes prevention of ill-health and health improvement an attractive strategy for governments. The key changes driving health and social care until 2010 are varied and are summarized in Box 1.24. They provide the current context for health promotion, which is explored below.

Box 1.24 Key changes driving UK health and social care

The economic and political context

Information and service sector growth replacing manufacturing
Extreme poverty will be eliminated but there will be a persisting gap between rich and poor
Long-term unemployment will increase
Increasing migration and number of refugees.

Demographic changes

Increasing elderly population, both in absolute terms and as a percentage of the total population
Fastest growing age segment is older adults over 80 years
Declining birth rate, deferred child rearing.

Epidemiological trends

Increase in non-communicable diseases
Growth in mental ill-health
Overeating and obesity
Emerging and resurgent infectious diseases.

Consumer wants

Choice as a fundamental of political ideology
Increase in well-informed, demanding consumers
Empowerment of older people – gerontocracy
Access to IT-based information.

[Resource: Warner M, Longley M, Gould E et al 1998 Healthcare futures 2010. Welsh Institute Health and Social Care, University of Glamorgan, Pontypridd]

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Health promotion

Health promotion encompasses all the activities below:

Monitoring children’s height, weight and developmental progress
Encouraging ‘flu jab’ uptake by TV campaigns
Organizing access to clean needles for intravenous drug users
Assessing a surgical patient’s smoking status
Encouraging tooth brushing with learning disability residents
Explaining to parents how their child should use an inhaler
Teaching stress reduction to people with mental distress
Helping people access their full benefit entitlements
Supporting the rights of non-smokers to have a smoke-free workplace
Immunizing children
Supporting people with weight loss programmes
Undertaking blood pressure checks in workplaces
Developing an anti-bullying programme in primary schools
Working with community groups about local traffic issues, e.g. calming measures.

These different activities have a common aim in that they are all positive actions to improve health which, in summary, is what health promotion is all about. It is of note that only some of the activities above relate to physical health and it is important to recognize that health promotion encompasses all dimensions of health (p. 4). Contemporary health promotion often focuses on social and economic issues such as poverty and inequalities in access to healthcare and services.

The focus of health promotion activity could be the whole population but often activities are targeted to meet particular needs, focusing on one or more of the following:

Key stages of the lifespan – pregnancy and breastfeeding, child development, parenting, retirement
Certain age groups – preschool or secondary school children or people over 50 years
High risk groups – homeless people, children and young people looked after by local authorities
Excluded groups – inequalities of access for minority ethnic groups, travelling people, people with mental distress or learning disability
Specific physical illnesses – CHD, diabetes, high blood pressure
Gender-specific issues – testicular cancer, breast or cervical cancer, menopause
Lifestyle-related issues – smoking, drugs and alcohol, diet, activity levels, sexual health
Mental and emotional health – awareness raising, suicide prevention, anti-stigma, anti-bullying
Settings and situation related – schools, prisons, workplaces, community (Box 1.25).

Box 1.25 imageHEALTH PROMOTION

Exploring health promotion initiatives

Student activities

1. From the list below, choose a health promotion initiative that interests you:
Free fruit schemes in school
Paths to Health – walking activity for over 50s
SureStart – positive parenting
Don’t suffer in silence – anti-bullying
Baby Friendly Initiative – breastfeeding
See Me – reducing stigma for those with mental distress
NHS mammography.
2. Using an online search engine, find out more about the specific initiative, noting:
Its aim, methods and focus
Its target group
Whether it is delivered nationally or locally.
  Page 21 

Health promotion is a useful summary phrase that covers a broad range of activities aimed at improving positive health and preventing ill-health. The most well-known definition is that of the WHO (1984) who define health promotion as ‘the process of enabling people to increase control over, and to improve, their health’.

The National Service Framework for Mental Health (DH 1999b) defines mental health promotion as any action to enhance the mental health and well-being of individuals, families, organizations and communities (Box 1.26). Standard 1 aims to ensure that health and social services working with individuals and communities reduce discrimination and promote social inclusion. In the policy document Making it Happen: A Guide to Delivering Mental Health Promotion (DH 2001a) there is a focus on preventing mental health problems by tackling issues related to wider health determinants which contribute to mental distress, e.g. bullying at school or in the workplace, reducing fear of crime and improving access to environmental or recreational services.

Box 1.26 imageHEALTH PROMOTION

[Adapted from NeLH/Mentality 2002 What is mental health promotion? Online. Available: www.nelh.nhs.uk 14 July 2006]

Mental health promotion

Mental health promotion operates at three levels within the population:

Strengthening individuals, e.g. promoting life skills, parenting skills, improving self-esteem at any stage of the lifespan
2. Strengthening communities, e.g. social support, social inclusion, improving neighbourhoods, anti-bullying, workplace health, safety and accident prevention, childcare and self-help networks
3. Reducing structural barriers to mental health, e.g. reducing discrimination and inequalities, combating stigma, promoting equal access to education, housing, services and support.

Student activity

Thinking back to your recent practice experience, consider which levels of mental health promotion you have been involved with.

Emergence of health promotion

Health promotion grew from the WHO Health for All (HFA) movement, the original title being HFA by the Year 2000 (WHO 1977). The Declaration of Alma-Ata (WHO 1978) was the birth of the HFA movement and its values underpin contemporary health promotion, with its aims and principles cascading from international level to inform national legislation. The Alma-Ata declaration states that health for all:

Involves the population as a whole in the context of their everyday life, rather than focusing on people at risk of specific diseases
Is directed towards action on the causes or determinants of health to ensure that the total environment which is beyond the control of individuals is conducive to health
Combines diverse, but complementary, methods or approaches
Aims particularly at effective public participation, supporting the principle of self-help movements
Is an activity in the health and social fields but is not a medical service, yet health professionals in primary care have an important role.

The centrality of primary care (or primary healthcare) to health promotion was first acknowledged here and it remains a key feature of all HFA declarations. Primary care is the first tier of health provision, provided by generalists in the local community ‘as close as possible to where people live and work’ (WHO 1978). Members of the primary healthcare team include general practitioners (GPs), practice nurses, health visitors, dentists, opticians and pharmacists. Other key aspects of the Alma-Ata declaration are summarized in Box 1.27.

Box 1.27 The Declaration of Alma-Ata

[Based on WHO 1978]

This declaration was made in the context of:

800 million of the world’s population being in absolute poverty
A third of all deaths being in the under-5 age group
Up to 95% of people in developing countries having no access to health services.

It expressed the need for urgent action by all governments, health and development workers and the world community to protect and promote the health of all of the people of the world.

The main foci of the Alma-Ata declaration were:

State responsibility for health
Action in social/economic sectors
Recognizing health inequalities in and between countries
Sustainable economic and social development leading to increased quality of life
Participation by individuals and communities to increase their health.

The Ottawa Charter (WHO 1986) is arguably the most important health promotion document, providing the underpinning philosophy and setting the scene for all later developments. It described prerequisites of health as peace, education, shelter, food, income, social justice, a stable economy and sustainable resources. Five major types of health action were to:

Build healthy public policy
Create supportive environments
Strengthen community action
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Develop personal skills
Reorient health services towards primary care.

The Ottawa Charter also highlighted a future commitment to health promotion with emphasis on developing health-promoting policies and environments and working with communities, not just focusing on individual lifestyle behaviours.

Principles of health promotion

The WHO used the HFA principles to devise the principles of health promotion (WHO 1984), the key principles of which are shown in Box 1.28.

Box 1.28 Principles of health promotion

[From WHO 1984]

Health promotion programmes, policies and other organized activities should be planned and implemented so that health promotion can be:

Empowering: Enabling individuals and communities to assume more power over the personal, socioeconomic and environmental factors that affect their health
Participatory: Involving those concerned (the stakeholders) in all stages of planning, implementation and evaluation
Holistic: Fostering physical, mental, social and spiritual dimensions of health
Intersectoral: Involving the collaboration of agencies from relevant sectors
Equitable: Guided by a concern for equity and social justice
Sustainable: Bringing about changes that individuals and communities can maintain once initial funding has ended
Multistrategy: Using a variety of approaches including policy development, organizational change, community development, legislation, advocacy, education and communication, in combination with one another.

Health promotion and public health

It may be a source of confusion for students, and indeed health professionals, that there are two similar sounding phrases describing similar types of work – health promotion and public health. Health promotion means different things to different people and there are difficulties in distinguishing between this and public health. The Acheson Report (Acheson 1998) described public health as the science and art of preventing disease, prolonging life and promoting health through the organized efforts of society.

When comparing health promotion and public health, there are three main views expressed:

Health promotion and public health are different
Health promotion and public health are the same
Health promotion overlaps with, or is part of, a broader concept called public health (Box 1.29).

Box 1.29 Health promotion and public health

1. Health promotion and public health are different

Health promotion can be seen as deriving from a more social model of health with a focus on healthy public policy, addressing determinants such as inequalities, using community approaches and advocacy. Public health can be described as an elaboration of the medical model, traditionally involving a focus on communicable disease, environmental health, screening and immunization.

2. Health promotion and public health are the same

Increasingly the two terms are used synonymously in the literature. Many universities have changed their postgraduate programme titles from Health Promotion to Public Health and in primary care the term public health is more commonly used than health promotion. Other phrases including health improvement and health gain also appear frequently in modern health policies.

3. Health promotion overlaps with, or is part of, a broader concept called public health

This may be the most common prevailing view. It is seen as unhelpful to describe health promotion as a separate entity and it should be seen as an integral part of public health. The Acheson Report (1998) clearly defines health promotion as part of the broader concept of public health. Health promotion has been described as the implementation arm of public health. The two entities can also be seen as having overlapping spheres of activity such as health education, strategic planning and legislation. Sometimes the phrase ‘new public health’ is used to include health promotion.

Box 1.30 shows the current focus in UK public health practice.

Box 1.30 Current focus in public health practice

[Resource: Skills for Health 2004 Public health practice national competence framework. Online. Available: www.skillsforhealth.org.uk]

Surveillance and assessment of the population’s health and well-being
Promoting and protecting the population’s health and well-being
Developing quality and risk management within an evaluative culture
Collaborative working for health and well-being
Developing health programmes and services and reducing inequalities
Policy and strategy development, and implementation to improve health and well-being
Working with and for communities to improve health and well-being
Strategic leadership for health and well-being
Research and development to improve health and well-being
Ethically managing self, people and resources to improve health and well-being.

National health promotion organizations

Each UK country has its own agency or authority for health promotion. Students should explore the relevant links to their own country (see ‘Useful websites’, p. 35). Covering the whole of the UK, the Health Development Agency emerged in 2000 from the Health Education Authority (HEA), which it replaced.

England no longer has a national health education body and its core functions are undertaken by the Department of Health whose website covers specific topics including alcohol, children and families, drugs, immunization and sexual health.

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The Health Promotion Agency for Northern Ireland supports those working in the areas of health promotion and public health, as well as members of the public.

Health Promotion Wales arises from the Welsh National Assembly. Their website has links to the Chief Medical Officer website and supports the promotion of health and well-being in Wales. The National Public Health Service for Wales (NPHS) coordinates the activities of the public health resources of all health authorities in Wales, including laboratory services and communicable disease surveillance.

Scotland’s agency is NHS Health Scotland which provides a national focus for collaborative work to improve health and reduce inequalities.

Values in current health promotion practice

The values that nurses and health promoters need for effective practice that underpins health promotion skills in the 21st century (Health Education Board for Scotland 2000) are:

Being aware of and understanding health-related beliefs, attitudes and skills
Creating opportunities to enable individuals to make choices and decisions for themselves
Encouraging individuals, families, groups and communities to identify their health-related needs and to work in partnership together
Developing and supporting health promoting environments and encouraging different sectors to work together
Considering health as an integral aspect of life
Promoting the view that social and emotional security, and mental and spiritual well-being, are as important to overall well-being as physical health
Recognizing influences working against health, e.g. marketing of cigarettes or advertising of junk food, unemployment, pollution and homelessness
Recognizing the impact that life circumstances have on health
Working towards reducing life and health inequalities.

Settings and skills for health promotion

Health promotion covers a wide range of activities which take place in many settings. NHS settings include hospitals and primary care. It also takes place in communities, voluntary organizations, workplaces, schools, in self-help groups and through the media. The skills used in health promotion also vary depending on the:

Type of activity undertaken
Client group
Setting (see Chs 3, 9 and 14).

Health promotion skills are very similar to those of modern nurses and include needs assessment, planning and research, evaluation, communication, a counselling approach, management, networking, teaching, marketing, influencing policy and practice change, writing and publication.

Approaches to health promotion

Bottom-up and top-down approaches are the two main views of health promotion. They represent issues of power, control and relationships differently and this underpins their use in health promotion settings.

‘Bottom-up’ refers to the generation of issues, concerns and expressed needs from clients themselves rather than the experts being in charge. In this approach, clients are encouraged to be participative, taking an active part, or even the lead role, in identifying what they need in terms of information or assistance.

‘Top-down’ is the opposite approach and describes situations where the nurse or health promoter takes the lead and identifies concerns for, or on behalf of, clients. This approach is also described as expert led. Here, there is less client participation and less equality in the relationship. Sometimes, there is no contact with the client at all as in the case of TV health campaigns. Health advertisements try to market health in the same way as other products and often use celebrity endorsement. Health promotion through the media is also top-down as it has been planned and designed by experts and is one-way and impersonal. It is increasingly common for health and illness-related themes to be addressed through TV dramas and soap operas.

There are five ways of thinking about or viewing health promotion: medical, behavioural change, educational, client-centred and societal approaches.

  Page 24 

The medical approach

This approach to health promotion is about encouraging people to seek medical help and to comply with prescribed treatment. It employs top-down methods to ensure that patients to cooperate and comply. The aim is to reduce risk factors and prevent ill-health. Methods include preventative procedures such as immunization and screening, in addition to information-giving and persuasive advice about lifestyle changes, e.g. giving up smoking. The latter can be carried out in person, by leaflets or through the mass media, e.g. television advertisements.

The behavioural change approach

Using this approach encourages individuals to make positive health-related changes, however small, e.g. encouraging people in the workplace to increase their exercise levels by using the stairs instead of taking the lift. Other commonly targeted lifestyle behaviours include smoking, alcohol use, diet and nutrition. The aim of this approach remains the prevention of disease by reduction of associated risk factors. It remains a top-down, expert-led approach, although participation may be encouraged.

The educational approach

This approach can be undertaken with individuals but more often involves group work. Group work is considered to be essential to explore and challenge people’s attitudes, clarify misconceptions and ensure that the knowledge which people need to make informed decisions is available. Communication skills are key to this approach (see Ch. 9).

This approach may also focus on skills development as well as knowledge and attitudes. For example, within the subject of healthy eating, budgeting or cooking skills may be practised.

This approach can either use bottom-up strategies or be directive and expert-led, depending on the design of the session.

The client-centred approach

This is a wholly bottom-up strategy where clients, either individuals or groups, identify their own concerns or areas where they need more information or assistance. Clients are seen as full equals in the process and the aim of this approach is empowerment, i.e. clients are enabled to maintain or increase control over their own lives. This means that the health promoter does not take charge of the situation but acts only as a facilitator. Often this approach is carried out in community groups where, for example, a local mother and toddler group may raise concerns about safety and local road crossings.

The societal approach

This approach is large scale and often seen as political. It frequently involves a focus on broader social and environmental determinants of health. It can be bottom-up in approach, e.g. where night-duty nurses organized a petition, lobbied managers and caterers and then successfully negotiated healthier food choices at night in their hospital canteen. It can also be top-down, e.g. when central government made seat belt wearing compulsory by law or local rules enforced no-smoking areas at work.

Societal change usually requires fundamental and far-reaching political action which is beyond the scope of individuals. This is especially true when trying to reduce inequalities in health by, for example, addressing minimum wage legislation and levels of state benefits.

Models of health promotion

Models of health promotion are theoretical frameworks giving examples of health promotion activities such as preventative health services, health education, community-based work, public policies and organizational development, and economic and regulatory activities. These activities can be at international, national, regional or local levels.

Tannahill’s model of health promotion

The Tannahill model (Fig. 1.5) defines health promotion as comprising efforts to enhance positive health and prevent ill-health, though the three overlapping spheres of:

Health education
Prevention (of ill-health)
Health protection.
image

Fig. 1.5 The Tannahill model

(reproduced with permission from Naidoo and Wills 2000)

Health education is defined in Tannahill’s model as communication activity aimed at enhancing positive health and preventing or diminishing ill-health. This can be carried out with individuals or groups, through influencing the beliefs, attitudes and behaviour of those with power and of the community at large. This is considered further in the next section.

Prevention of ill-health is described by Tannahill as activities concerned with reducing the risk of occurrence of ill-health, or an unwanted event. Different levels of prevention exist and activities from adult nursing are used as examples:

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Primary prevention of the first occurrence of a given illness or other unwanted phenomena, e.g. immunization
Secondary prevention of the avoidable consequences of an illness through early detection and treatment, e.g. screening
Tertiary prevention of the avoidable complications of an established irreversible disease, e.g. rehabilitation.

Box 1.31 shows levels of prevention applied to other nursing settings.

Box 1.31 imageHEALTH PROMOTION

Levels of Prevention

Learning disability nursing

Primary prevention – self-care education, e.g. dental hygiene
Secondary prevention – screening for sensory deficits
Tertiary prevention – management of epilepsy.

Mental health nursing

Primary prevention – self-care education, e.g. safe use of prescribed medicines, stress management
Secondary prevention – screening, using a mental health assessment tool
Tertiary prevention – rehabilitation techniques for schizophrenia.

Child health nursing

Primary prevention – positive parenting strategies, accident prevention for toddlers
Secondary prevention – preschool child development checks
Tertiary prevention – nebulizer training for parents of children with asthma.

The third sphere of activity in the Tannahill model is health protection which includes the public policy framework for prevention of ill-health and positive enhancement of well-being. It includes legal, fiscal and political measures, e.g. tobacco tax, or policies, laws and codes of practice, e.g. seat belt legislation. Another example of legislation for health is the policy document Valuing People: A New Strategy for Learning Disability for the 21st Century (DH 2001c) which was the first government White Paper about people with learning disabilities for 30 years and seeks to legislate to address the inequalities of access to services (see also Valuing people website in ‘Useful websites’, p. 35).

The Tannahill model is straightforward and easy to use, fitting well with nursing and other healthcare practice in primary care and NHS settings. However, it has been criticized for its medical model approach, its largely individual focus and the lack of emphasis on social determinants of health and illness. It may be less helpful in community settings and when working with disadvantaged or excluded groups. The activities in Box 1.32 will help you apply the Tannahill model of health promotion to nursing practice.

Box 1.32 imageREFLECTIVE PRACTICE

The Tannahill model in practice

Student activities

1. Look at the ‘three spheres of activity’ that the Tannahill model uses to summarize health promotion. Think about your experience in practice and identify nursing activities which could be defined as:
Health protection
Health education
Prevention of ill-health.
2. Identify opportunities for health promotion in your placement.

The Tones model

An empowerment model of health promotion was devised by Tones in 1993. It aims to enable people to gain control over their own health and in this way it sounds very similar to the important WHO (1986) definition of health promotion. A summary of the model (Tones & Tilford 2001) reads like a formula:

Health promotion 5 health education 3 healthy public policy.

The full model is more complex than the Tannahill model. Starting at the bottom of Figure 1.6, education is seen as critical to the process of raising awareness so that people can make informed health choices, participate in and influence health policy. This applies to both lay people and health professionals. In this model, healthy social and environmental factors are emphasized and this view fits better with bottom-up, community-based approaches as in mental health, learning disability and voluntary organizations. It may be harder to envisage this model in relation to working within a traditional NHS setting.

image

Fig. 1.6 The Tones model of health promotion

(reproduced with permission from Naidoo and Wills 2000)

Health education

Although people may use the terms health promotion and health education interchangeably, they are not the same. As seen above, health education is just one part of health promotion and is only one of many methods available to the nurse or health promoter. It has been mentioned above as one of the five approaches to health promotion (see p. 24) and forms one-third of health promotion according to the Tannahill model (see Fig. 1.5). Health education was also described as one half of the summarized Tones Model (see Fig. 1.6).

There are many diverse definitions of health education, some of which are listed below. Health education (as adapted from Kiger 1995) can be described as:

A communication activity, e.g. the Tannahill model
Persuading people to adopt and sustain healthful life practices
  Page 26 
Developing people’s skills in decision-making and clarifying beliefs and values about health
Changing the knowledge, feelings and behaviour of people
An information-giving activity
Persuading people to use available health services wisely
Enabling people to improve their own health
Enabling people to control their own health, e.g. the Tones model
Assisting communities to engage in conflict with powerful authorities
Seeking to modify behaviours responsible for disease
Seeking the roots of health problems and finding them in social, economic and political factors.

Approaches to health education

Kiger (1995) described five approaches to health education: medical, educational, media/propaganda, community development and political action. These can be compared to the five approaches to health promotion explained earlier (p. 24). The approaches to health education are outlined below with examples of the likely methods used:

The medical approach to health education assumes that rational facts will persuade people to change their health-related behaviour. Methods include expert advice, talks, lectures, booklets and leaflets, alone or in combination.
The educational approach to health education does not mean instruction in the same way as the medical model but rather ‘leading to learning’. It uses people-centred methods such as discussion groups, problem-solving, values clarification, skills teaching, role play and peer work.
The media/propaganda approach to health education has been described as manipulation for health. Like the medical model it uses the mass media, TV and radio advertisements and markets health as if it were a product.
The community development approach centres on enabling and empowering people. It uses bottom-up methods that include assisting people to organize, change, raise awareness or gain consensus.
The political action approach seeks to promote societal or political change. It uses methods such as providing evidence, lobbying, mobilizing local support and exploring anti-health agencies.

The activities in Box 1.33 will help you think about health education approaches used in your placement.

Box 1.33 imageHEALTH PROMOTION

Health education approaches

Student activities

Look at the list of health education definitions (pp. 25–26) and identify similarities and differences in their approaches.
Consider the five approaches to health education and the examples of related health education activities and compare them with the health promotion approaches described on p. 24. Note the similarities.
Identify which of the approaches to health education are used in health education activities in your placement.
  Page 27 

Health education in the NHS

A medical approach to health education is sometimes known as patient education in NHS settings. Methods such as 1:1 talks/interactions, group work and written information, alone or in combination, have been shown to increase patients’ knowledge and understanding of their symptoms, illness, surgery, drugs or other treatments. Effective communication skills are vital to people’s understanding of information provided (Ch. 9).

As long ago as 1975, Hayward’s research demonstrated that there are positive effects when patients know what to expect and are prepared by being provided with suitable information prior to clinical procedures (Box 1.34).

Box 1.34 imageEVIDENCE-BASED PRACTICE

The positive effects of health information

Hayward (1975) found that the positive effects of preoperative health information and education for patients included:

Improved informed consent
Greater patient satisfaction
Increased compliance with treatment programmes
Better progress and outcomes
Reduced levels of distress during invasive procedures
Reduced anxiety levels
Reduced pain and need for analgesic drugs (see Ch. 23)
Faster recovery times
Shorter hospital stays.

Student activities

Reflect on the possible benefits of patient education listed above and identify examples from your personal experience when having information helped you or a family member.
Identify examples from your placement experience when having information helped a patient/client or their family.

Levels of health education

As well as having different approaches, health education is also described as having different levels: primary, secondary and tertiary.

Primary health education

Primary health education involves a focus on the structure and function of the body or mind, how bodies or relationships work and how to promote and maintain them. Nurses carry out much primary health education in their everyday practice, e.g. each time information is given before informed consent is sought, lifestyle advice is offered or a procedure or treatment is explained to patients. It is usually undertaken with individuals but can be carried out in groups.

Undertaking health education with learning disability clients can be challenging because they have more complex health needs than the general population but tend not to have equity of access to health services (Gates 2003). This is also true for people from black or ethnic minority communities (NHS Health Scotland 2004). The Scottish Executive (2000) identifies seven fundamental principles, which state that people with learning disability should be:

Valued
Treated as individuals
Asked about what they need and be involved in choices
Given the help and support to do what they want to do
Able to get local services like everyone else
Able to get specialist services when they need them
Able to have services which take account of age, abilities and needs.

Some people with learning disabilities learn at a slower pace and key considerations for health education are summarized in Box 1.35.

Secondary health education

This takes the form of information and advice about services to improve and maintain health, how to get the best out of healthcare and other systems, what is available and how to complain if necessary. Nurses may also carry out secondary health education in their everyday practice, but perhaps less often than primary level health education. In all settings, but especially in community nursing, nurses have to help people to:

Understand their rights
Obtain contact details for community-based services
Be referred to agencies, e.g. housing associations
Gain access to complaints/suggestions forms.

Another empowering resource for people is the Patient Advocacy Liaison Service (PALS). This government initiative ensures that each Trust has PALS officers to provide help, information, advice and support locally and to help address any concerns or problems experienced by patients and their families.

Tertiary health education

The highest level is tertiary health education which focuses on raising awareness of the sociopolitical health determinants such as unemployment, education, pollution, water and food quality, and traffic levels. Another focus is the activities of the anti-health sector of the economy such as advertising and sponsorship by tobacco companies. This is sometimes called consciousness raising and is common in bottom-up work with community-based groups. In general, it is less common for nurses to carry out this level of health education compared to the other two. Although not often part of mainstream NHS work, tertiary health education features in the education of health professionals and may include study of poverty, inequalities and other health determinants. Box 1.36 will help you consider levels of health education in nursing practice.

Box 1.36 imageHEALTH PROMOTION

Examples of health education

Student activity

Reflect on which level(s) of health education you have seen used in nursing practice and identify examples of:

Primary health education
Secondary health education
Tertiary health education.

UK health policy context

By 1986, the WHO’s main target for the following decades was that all citizens of the world should attain a level of health that would permit them to lead socially and economically productive lives by the year 2000. The European region of the WHO later introduced Health21, namely 21 targets for the 21st century, to achieve this goal (WHO 1998).

The first UK national targets for health were set in 1992 and each UK country devised its own targets and strategy documents. A further round of revised White Papers on health and healthcare appeared in 1999 following political devolution. The Jakarta Declaration on Health Promotion into the 21st Century (WHO 1997) was incorporated into all four national documents with collaborative working as the dominant theme.

While the aims described in the policy documents of all four UK countries are similar in their focus on tackling health inequalities and social exclusion, they are quite different in the use of language, approach and in their organizational development. Despite emphasis on integrated policies and collaborative services, the UK has been described as developing four distinct health services (Muir & Sidey 2000). This is complex for health professionals so it is recommended that emphasis be placed on the policies relating to the reader’s own UK country. These policies can be accessed on links from the homepages of each country’s national agency for health. Box 1.37 gives examples of some key health policy documents.

Box 1.37 Key health policy documents

England

The New NHS (DH 1997)
Saving Lives: Our Healthier Nation (DH 1999)
NHS Plan (DH 2000)
Wanless Reports (HM Treasury 2002/2004)
Choosing Health (DH 2004)

Scotland

Designed to Care (DH 1997)
Towards A Healthier Scotland (Scottish Executive 1999)
Improving Health in Scotland – The Challenge (Scottish Executive 2003)
Partnerships in Care (Scottish Executive 2003)

Wales

Putting Patients First (DH 1997)

Northern Ireland

Fit for the Future (DH 1999)

The health White Paper, Saving Lives: Our Healthier Nation (DH 1999a) was heavily influenced by the Jakarta Declaration, the Health21 targets, and the political and ideological changes of the Labour government that came to power in 1997. It was described as ‘the first comprehensive Government plan’ (DH 1999b). This public health strategy for England was published with twin goals: to improve health of everyone, and to reduce the health of the worst off in particular.

It was the first time that a government had formally acknowledged that poverty equated directly with poorer health. The strategy aimed to prevent up to 300000 untimely and unnecessary deaths by the year 2010. ‘Tougher but attainable targets’ sought to reduce the:

cancer death rate in people under 75 by at least 20%
CHD and stroke death rates in people under 75 by at least 40%
accident death rate by at least 20% and the serious injury rate by at least 10%
death rate from suicide by at least 20%.

The NHS Plan (DH 2000) recognizes that, despite its many achievements, the NHS has failed to keep pace with changes in society. It states that there is no greater injustice than inequalities in health, and outlines options for funding healthcare and for investments in NHS facilities and NHS staff in England. The plan outlines a new delivery system for the NHS as well as changes between health and social services, and changes for NHS doctors, nurses, midwives, therapists and other NHS staff. The plan also outlines changes for patients and in the relationship between the NHS and the private sector. In addition, the plan sets out strategies for cutting waiting times for treatment, improving health and reducing inequality. Actions for tackling clinical priorities and for services to older people are discussed and the reform programme outlined.

  Page 29 

Derek Wanless, the former chief of the NatWest Bank, was commissioned by the UK government to review the future of healthcare with emphasis on preventative health measures and health inequalities. In 2002, Wanless published his first report Securing Our Future Health: Taking a Long-term View and later updated this. His final report Securing Good Health for the Whole Population was published in 2004.

The reports assessed the resources required to provide high quality health services in England, how public health spending decisions are taken and how to ensure cost effectiveness. The report included information on the main causes of mortality, morbidity and key risk factors in England, including trends over time. Wanless avoided making specific recommendations but broadly stated that more research should be carried out before embarking on expensive public health initiatives. Furthermore, he stated that the government should assemble stronger evidence on cost effectiveness, before setting priorities.

The White Paper Choosing Health: Making Healthier Choices Easier (DH 2004) sets out key principles for supporting the public to make healthier and more informed choices regarding their health. It seeks to provide information and practical support to motivate people, and improve their emotional well-being and access to services so that healthy choices are easier to make. The key areas of action include inequalities, children and young people, the health-promoting NHS, work and health, and national and local delivery.

Measuring health and illness

Demography refers to the study of populations, with data gathered on the age, gender and size of groups within the population and the geographical spread or migration of those groups. It also covers what are known as vital statistics: births, marriages, divorces, separations and deaths. Box 1.38 shows some examples of UK demographic trends.

Box 1.38 imageCRITICAL THINKING

Demographic trends in the UK

The data below come from the 2001 Census and are available from National Statistics online:

The live birth rate has risen slightly and, combined with falling death rates, has contributed to the population of the UK slowly increasing. 2003 figures put the total UK population at just over 59 million
In 2002, 19.8 million of the population were 50 years or over. By 2031 this is projected to rise to 27 million
Older women outnumber older men and by age 85 years there are 2.6 women for every man
The average age for women giving birth is 29.4 years.

Student activity

Go to National Statistics online at www.statistics.gov.uk and search the database for information on other health-related topics, e.g. life expectancy, ethnicity, lone-parent families, disability or age on marriage.

Epidemiology is the study of the occurrence, patterns and spread of disease in a population. The data can demonstrate the scale of a health problem and its trends, showing changes in mortality and morbidity over time. Epidemiological data can highlight the natural history and progression of a disease, e.g. Snow’s 19th century work demonstrated that cholera spread from infected water pumps and was important in proving the existence of germ theory. Causation can be established when there is evidence that exposure to a particular environmental, lifestyle or socioeconomic factor contributes to ill-health and it was using these methods that the causal link between smoking and lung cancer was proven. Epidemiology can also show the severity of a problem and predict the ways in which individuals or communities may be affected. It can assess the likelihood, or probability, of a disease or condition occurring as well as suggesting how it can be tackled or prevented. Later, follow-up evaluation studies may show whether changes can be attributed to particular interventions.

Purposes of measuring health and illness

Health and illness can be measured in many ways and for many reasons. Measuring health and illness in communities provides the opportunity for:

Assessing a population’s health status
Describing the patterns of disease in populations, in either small groups or whole countries
Analysing differences between one population and another and, over time, identifying trends
Directing interventions appropriately, therefore increasing the population’s health and maximizing health potential
Identifying and responding to specific needs of minority groups or sections of the population whose health needs have not been fully met
Targeting at-risk groups to reduce inequalities in health
Making resource allocation more equitable
Influencing policy, research or development of priorities (Pencheon et al 2001).

In addition to measuring ill-health or death, information on the health status of people is also collected, e.g. height, weight and dental health. Such data act as a baseline, allowing comparisons over time and identification of trends. Another area of study is health behaviour indicators related to individual lifestyle, e.g. smoking status. Environmental indicators are also measured, e.g. air and water quality, housing type and density. Social environment indicators include wealth, income and social class, with one particular focus being the measurement of deprivation. There are many measurements used to identify underprivileged areas with a view to improving or targeting services. Two of the most well-known deprivation measurement tools are the Jarman index and the Townsend index, both of which take into account indicators such as social housing and lack of car ownership.

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The advantage of epidemiological and demographic studies is that information is collected regularly, it is relatively consistent and readily available. It is sometimes known as routinely available data and examples are shown in Box 1.39. Both of these quantitative sciences are largely concerned with numerical descriptions relating to groups of people. They do not focus on individuals but instead study the vital statistics or the ill-health of populations within society.

Box 1.39 Examples of demographic and epidemiological data

[From Naidoo and Wills 2000]

Mortality and morbidity rates
Reasons for primary healthcare consultations
Immunization rates
Screening rates
Accident rates
HIV, AIDS notifications
NHS waiting lists
Children at risk register
Child developmental health records
Poverty/inequality measures, e.g. Jarman index of disadvantage
Sociodemographic statistics.

Common methods of health and illness measurement

The common methods of measurement are counts and rates:

Counts are the simplest numerical description, e.g. 14 people in a nursing home have diarrhoea.
Rates are the number of affected people expressed as a proportion of a total population. Following the example above, if 14 people are affected out of a total nursing home population of 56, then the rate is 14/56 or 25%.

Percentages are the commonest way to express proportions. Sometimes, the numbers per 1000, per 10000 or per 1000000 are used instead of per 100 (percentage).

Incidence

Incidence, or incidence rate, refers to the rate of development, i.e. the new cases, of a disease or problem rather than the total number of people affected in a given period, usually 1 year. The number of people developing a disease in a group of known size over a specific period of time can be expressed in this way. For example, the incidence of depression in men aged 55–59 years in a particular country was 252 per 100 000 for the year 2002–2003. This means that there were 252 new cases of depression for every 100 000 of the population in this age group during the given year.

A mortality rate is similar to incidence except it refers to the number of deaths from a condition in a particular group during a period of time. SMR refers to standardized mortality ratio and uses the formula below:


image


The observed death rate in a defined population is compared to the rate expected in a standard population, e.g. the ratio of the rate of lung cancer deaths in smokers compared to that of non-smokers. Therefore, if the SMR is less than 100, the mortality experience of the study population is less than that of the reference population.

Prevalence

Prevalence, or prevalence rate, refers to the total number of people with a disease or condition in a group at a specific time. For example, the prevalence of chickenpox in a preschool nursery on a given day was 10%.

Distribution

Another key term used in epidemiology and demography is distribution. This refers to the spread of a problem or disease by age, gender, race, ethnicity, socioeconomic class, geography or other variable.

Other approaches to measurement of health and illness

Other than epidemiological study, there are three other main approaches commonly used in health and illness measurement: needs assessment, social audit and community profiling. The agency undertaking the measurement exercise and the purpose of the study determine the approach taken. The focus of study may be:

Using routinely available data or gathering primary data (new research)
At the individual level or whole populations
Exploring illness and disease or broader health determinants
Top-down or bottom-up (see p. 23)
Primarily using epidemiological data or community participation.

Needs assessment

This is commonly used in health and social care settings, especially in community-based work. It is described as the first phase in health promotion planning, namely identifying what a client or population group needs to enable them to be more healthy (Naidoo & Wills 2000).

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An individual approach to needs assessment focuses on a person’s lifestyle and behaviours, such as smoking status. The purpose of this is to gather data directly from the individuals in the community under study to inform health promotion planning for behaviour change and risk factor modification. No account is taken of the socioeconomic context or the social and environmental health determinants affecting individuals’ lives, leading to criticism that this is measurement of ‘behaviour in a vacuum’ (Perkins et al 1999).

Population-based needs assessment, or health needs assessment, is used by statutory bodies to measure health needs in defined populations. In the health arena, statutory bodies are centrally funded agencies, e.g. health authorities, local authorities and health promoting organizations, which undertake health-related work on behalf of the government.

One example of a population-based needs assessment is the Learning Disability Needs Assessment (NHS Health Scotland 2004), which highlighted changes in demographical trends, such as the:

Increasing number of people with learning disability
Increasing number of people with complex and multiple needs related to physical and learning disability
Increasing number of older adults with learning disability
High prevalence of health need, especially unmet health needs
Different mortality causes, e.g. high rates of oesophageal cancer.

Needs assessment uses an epidemiological approach and tends to be top-down, with limited community involvement. Quantifiable, secondary information is used with heavy reliance on available data such as Census and electoral ward information. Electoral wards are the key building blocks of UK administrative geography and data are held by the Office for National Statistics (see ‘Useful websites’, p. 35).

Needs assessment focuses on ill-health and the determinants of disease by measuring the incidence, prevalence and degree of severity of various health problems in a population, although causal links are not always obvious (Perkins et al 1999). For example, an increase in the level of youth suicide may be identified in a town but not the reasons behind it.

Social audit

Social audit is a broader approach to health and illness measurement than needs assessment. This is used by a wide variety of voluntary, statutory or community organizations to assess need at local, city or district levels and is wider in scope than lifestyle factors or ill-health rates. Social audit is underpinned by a broad and more social definition of health and health determinants. The interplay of resources, e.g. environment, housing, transport and employment, is a major focus.

Social audit often involves the collection of new primary data and is increasingly called health impact assessment. It tends to be top-down but includes a variable amount of community participation. It has been described as a socioeconomic approach to needs assessment which uses a wide range of quantitative, secondary data to give a view ‘of’ a community, rather than ‘from’ a community (Perkins et al 1999). This approach is professionally led and encourages multiagency working because different disciplines need to be involved, e.g. health promoters may be working with local councillors, transport consultants and environmental health specialists to consider the impact of traffic in a community.

Community profiling

Community profiling is the approach commonly used by local health boards, local authorities and councils to measure and evaluate the health and social needs of their populations. Its focus is how local people view their health and social needs in their community. The aim of community profiles is to obtain accurate and appropriate information from local people which is then used to support epidemiological and population data. This is often considered to be the most balanced and helpful approach to measurement of health and illness, as it uses both top-down and bottom-up strategies in the assessment. Community nurses, health visitors and those working in health promotion and public health are often involved in compiling these profiles. Many student nurses undertake a small community profile as part of their coursework.

Community profiling is sometimes known as the community participation approach to needs assessment. It uses client-centred methods and is underpinned by the concept of empowerment. It is described as ‘done with’ not ‘done to’ the community (Perkins et al 1999). The degree of community involvement is highly variable in this approach but it tends not to be dominated by professionals.

One potential problem in community profiling is trying to encourage meaningful community participation. Any assessment of community needs seeking public involvement needs to use creative methods of data collection to prevent ‘tokenism’. In addition to questionnaires and local surveys, more creative methods of community participation in data collection or evaluation include focus groups, 1:1 interviews, photographs, collage, examples of work from community groups, audiotapes, video work and drama.

Another potential problem is that community involvement can raise unrealistic expectations. Community profiling tends to identify large numbers of needs that cannot all be tackled due to staff, time and financial constraints. Delays or perceived inaction can dishearten participants in the data collection who may have high expectations of change and improvements in their community health and social services.

Priorities

Of the many identified health needs arising from the assessment process, some needs take precedence because they are considered more important than others. They are therefore tackled first and this is called prioritizing, or priority setting. Health economists refer to this as rationing, describing finite resources but infinite needs.

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The reasons why one particular issue becomes a priority are many and varied. It may be simply that the local health professional’s personal interest area or expertise is the deciding factor in which need is tackled first or in what order needs are addressed. Usually, however, priorities are set in line with a central or local policy either alone or in combination, for example:

National or central government agenda and targets
Local authority agenda and targets
Resources and funding availability
Local people’s identified priority.

Health Improvement Programmes (HImPs)

Needs assessment and priority setting at a local level are requirements of each primary care trust in England in collaboration with key stakeholders, e.g. local authorities, voluntary organizations, health professionals and community representatives. This collaborative activity forms the basis of HImPs which are strategic plans to address health, healthcare and services needs in a local area. A key aim of HImPs is to encourage different agencies to work together in a more integrated manner. Programmes can then be developed to tackle inequalities and promote social inclusion.

Priorities for HImPs can be nationally set targets arising from Saving Lives: Our Healthier Nation (DH 1999a) such as the delivery of SureStart, services for preschool children and their parents. Local targets for health improvement can also be listed as priorities when they are issues of particular relevance to an area, e.g. under-age drinking in a town centre. Find out about the HImP for your local area by undertaking the activities in Box 1.40.

Box 1.40 imageHEALTH PROMOTION

Health Improvement Programmes

Health Improvement Programmes (HImPs) are a cornerstone of current health promotion strategy.

Student activity

Find the HImP for your local area using an online search engine and identify:

Local priorities for funding and programme development
National and local targets within the HImP.

Illness behaviour

When people are ill their reactions to it are described as illness behaviour, i.e. what they do and how they respond to their changing health state. Illness behaviour is complex and occurs in the context of the family or support system and it is sometimes said that it is not individuals who become ill, but the whole family. The study of illness behaviour focuses on people’s experience of illness, their interpretation of, and reactions to, symptoms which may limit their normal function or activities, and how chronically ill individuals cope with the practical and emotional demands of their illness.

Increasingly, instead of illness behaviour, it is called ‘illness action’ to emphasize the fact that people are active participants in dealing with their own (and others’) illness. Each person reacts differently to illness, or the threat of it, in terms of both their behaviour and emotions. Different illness reactions make it crucial that nurses understand and empathize with the experiences of their patients and clients in order to plan suitable, individualized care interventions. The components of Becker’s health belief model (p. 11) – including culture, gender, the person’s attitude to the illness and their family’s reaction to it – are variables which may affect illness behaviour. Another major influence is the nature of the illness itself as patient/client reactions may depend on whether the problem is:

Short or long term
Life threatening or not serious
Sudden or acute in onset
Chronic, recurring or progressive in pattern (see Ch. 11)
Disfiguring or not.

Self-help

Most symptoms are dealt with by people themselves without seeking formal medical help. Self-treatment with over-the-counter (OTC) medicines bought from supermarkets, corner shops or pharmacies is increasingly common as is the use of homeopathic and other complementary treatments.

It is common for people to use a lay referral system where they ask trusted friends, colleagues or family members for advice about symptoms or treatment. Sometimes it is the lay ‘referees’ who diagnose and recommend an OTC medicine from the pharmacy. They may also strongly suggest that the person seeks medical help and exert pressure until they comply. This is known as ‘sanctioning by significant others’.

The effects of illness

Illness, especially when serious, chronic or life threatening, can have far-reaching effects on a wide range of issues such as the ability to function physically or mentally, coping with increased stress, family roles and dynamics, caring roles, work roles, finances, body image, self-concept and self-esteem. Reactions to serious illness sometimes resemble loss and bereavement responses such as shock, denial and disbelief (see Chs 11, 12).

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Help-seeking behaviour

In the sociology of health and illness, help-seeking behaviour is a major theme for study which seeks to answer questions such as:

Why do some people seek medical help for particular symptoms while others do not?
What factors increase the likelihood of people seeking medical help?

The more visible, frequent and disruptive in day-to-day life a symptom is, the more likely a person is to seek medical help (Box 1.41). This, however, must be set in the context of the person’s knowledge, their estimate of the seriousness of the symptoms and the family’s tolerance of any restriction of role function caused by it.

Box 1.41 Determinants of help-seeking behaviour

[Resource: Mechanic D 1978 Medical sociology. Free Press, New York]

Mechanic (1978) described 10 determinants of help-seeking behaviour, i.e. factors that influence a person’s decision to seek medical help:

How visible a symptom is, e.g. obvious skin rash or limp
The person’s estimate of the seriousness of the symptom, e.g. sleep disturbance
The person’s knowledge and understanding about the symptom
How much the symptom disrupts usual roles and function, e.g. family, work, social activities
Frequency or persistence of symptoms, e.g. headache daily for more than 1 week
How much the symptom is tolerated by family and friends, e.g. smoker’s cough
How much basic needs are affected by the symptom, e.g. dental pain restricting eating
How much other needs compete with illness responses, e.g. too busy with child care to rest swollen feet
How much the person has other reasons for the symptoms, e.g. low mood and tearfulness described as tiredness in the mother of a newborn infant
How available medical help or treatment is in terms of access, cost and time as well as emotional costs like stigma, e.g. a person with possible symptoms of a sexually transmitted infection delays seeking help because of embarrassment.

There is sometimes a problem with the view that interruption to normal activity is seen as the main trigger for seeking help. For conditions with a slow, insidious onset, e.g. cancer, HIV or Alzheimer’s disease, the person can carry on with normal activities for a lengthy period and there may be a considerable delay in seeking help, allowing symptoms to become more advanced before help is sought.

The sick role

Triggers that strongly influence a person’s decision to see medical help frequently relate to the wider context of their life rather than the symptoms of ill-health directly. For example, someone experiencing interpersonal problems in their wider life is much more likely to notice physical symptoms and then seek help.

In 1952, Talcott Parsons proposed the concept of the sick role where illness is seen as abnormal and/or disrupting an individual’s usual activities. Parsons believed that people learn the sick role through socialization starting in childhood and change their behaviour when trying to cope with illness. The sick role was described as temporary and conditional on the sick person cooperating to get well again as soon as possible. Parsons (1991) described three main tenets of the sick role:

The sick person is not held personally responsible for their illness, meaning that they cannot be blamed for their situation as the cause of the illness is beyond their control. Illness is therefore seen as not resulting from personal behaviour or actions. Critique of this first tenet may involve its lack of application to some illnesses or conditions where blame is attributed, e.g. self-harm, STIs or substance misuse which all have moral overtones.
The sick person has certain special rights including the privilege of withdrawing from normal tasks or responsibilities. The sick person may be expected not to attend work or school and is allowed to withdraw from household tasks. It might be permissible for the sick person to stay in bed and require to be looked after, but this is strictly temporary. Impolite behaviour may well be tolerated or excused because of the illness. Critique of this tenet is that it does not extend to people with disability. Restriction of activity and staying in bed is neither suitable nor required for people with chronic mental or physical illness. Withdrawal from activities, except in the short term, does not fit with modern concepts of rehabilitation (see Ch. 11).
The sick person must actively try to get well by seeking expert help and following instructions in the ‘patient role’. Parsons believed that the true sick role can only be conferred by a medical expert whose job it is to legitimize the illness. This removes any doubt that the sick person is malingering and makes the illness official. The patient is expected to cooperate and try to recover as soon as possible by obeying instructions such as adhering to prescribed treatments. Sick role status will not be granted, and sympathy and special rights quickly evaporate, if the sick person will not seek medical help or cooperate. There has been widespread criticism of the inappropriateness of the sick role concept in relation to people with incurable or terminal illness.
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The activities in Box 1.42 will help you think further about the sick role. It is interesting to note how congruent Parson’s sick role concept is with the bio-medical view, reinforcing ideas that patients are passive. However, since the sick role was first described in the 1950s, nurses and healthcare workers are much more likely to expect patients to be actively involved in all aspects of their care.

Box 1.42 imageCRITICAL THINKING

The sick role

Student activities

Consider Parson’s sick role and think about your experiences, both personal and from your clinical practice.

How well does the sick role explain your own experiences of ill-health?
2. Review the following situations and consider how appropriate the sick role is for:
A child with chickenpox
A teenager with appendicitis
A man with longstanding depressive illness
A woman with chronic fatigue syndrome/ME
A child with a learning disability and cerebral palsy
A woman who has recurrent migraine headaches.

Summary

Personal definitions of health may vary widely from official definitions.
Health is multidimensional in nature, encompassing physical, mental, emotional, social, spiritual and societal dimensions.
The medical model is less dominant in contemporary approaches to health promotion.
Health beliefs vary widely and understanding them is an essential part of nurses’ involvement in health promotion activities.
Changes in health behaviour often need to be preceded by change in people’s attitudes and values but this is often difficult to achieve.
Many factors influence health, the key determinant being poverty which is linked to inequalities in health.
The Health for All movement and subsequent legislation underpin health promotion activities, which may take place at global, national and local levels.
Health promotion includes a wide range of activities that are often targeted to particular groups. It takes place in many different settings and forms part of the role of all nurses. The overall aim determines the approach taken and methods used.
Health education is part of health promotion – it also takes many forms and is carried out in a range of settings.
Measuring health and illness can involve nurses and provides valuable information for healthcare planning.
Illness behaviour includes self-help, lay referral systems, help-seeking behaviour and the sick role.
People today have high expectations of health and healthcare.

Self test

1. State the WHO (1946) definition of health, explaining the phrase ‘health is multidimensional’.
2. Outline some key determinants of health.
3. Differentiate between relative and absolute poverty.
4. Name some ancient health beliefs which are still prevalent today.
5. Compare and contrast approaches to health promotion and health education.

Useful websites

National agencies

Health Promotion Agency of Northern Ireland www.healthpromotionagency.org.uk
Available July 2006
Health Promotion Wales www.hpw.wales.gov.uk
Available July 2006
Health Protection Agency www.hpa.org.uk
Available July 2006
National Institute for Health and Clinical www.publichealth.nice.org.uk/
Excellence (incorporates the former Health Development Agency) Available July 2006
National Public Health Service for Wales www.wales.nhs.uk/sites/home.cfm?ORGID=368
Available July 2006
NHS Health Scotland www.hebs.scot.nhs.uk
Available July 2006
Patient Advice and Liaison Services (PALS) www.dh.gov.uk/
PolicyAndGuidance/
OrganisationPolicy
PatientAndPublicInvolvement/
PatientAdviceAndLiaison
Services/fs/en
Available July 2006

Health topics

Alcohol www.wrecked.co.uk
  Available July 2006
Drugs http://talktofrank.com
  Available July 2006
Immunization www.immunisation.nhs.uk or
  www.mmrthefacts.nhs.uk
  Available July 2006
Sexual health www.playingsafely.co.uk
  Available July 2006

Health information and advice

Department of Health www.dh.gov.uk
  Available July 2006
Learning disability policy www.valuingpeople.gov.uk
  Available July 2006
Office for National Statistics www.statistics.gov.uk
  Available July 2006

NHS Direct (Tel: 0845 4647) is a national helpline staffed 24 hours a day by qualified nursing staff. It offers information on the NHS and current health and illness issues.

NHS Direct Online (www.nhsdirect.nhs.uk) is the internet arm of NHS Direct and has links with NHS Direct Wales and NHS 24.

NHS Direct Wales (Tel: 0845 4647) offers the same service in Wales.

NHS 24 (Tel: 0845 24 24) provides a similar service in Scotland.

Key words and phrases for literature searching

Determinants of health
Dimensions of health
Health beliefs
Health definitions
Inequalities
Poverty
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References

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Barker P, editor. Psychiatric and mental health nursing. London: Arnold, 2003.

Becker MH, editor. The health belief model and personal health behaviours. Thorofare, NJ: Slack, 1974.

Blaxter M. Health and lifestyles. London: Tavistock Routledge, 1990.

British Heart Foundation. CHD statistics database. London: BHF, 2003.

British Medical Association. Diabetes mellitus: an update for health professionals. London: BMA, 2004.

Childline. Bullying: information for teachers and professionals working with young people. London: Childline, 2004.

Dahlgren G, Whitehead M. Policies and strategies to promote social equity in health. Copenhagen: WHO, 1991.

Department for Education and Skills. Tackling bullying: listening to the views of children and young people. London: DfES, 2003.

Department of Health. Saving lives: our healthier nation. London: TSO, 1999.

Department of Health. 1999b National Service Framework for mental health. Online: http://www.dh.gov.uk. Available July 2006.

Department of Health. The NHS plan. London: TSO, 2000.

Department of Health. 2001a Making it happen: a guide to delivering mental health promotion. Online: http://www.dh.gov.uk. Available July 2006.

Department of Health. The expert patient: a new approach to chronic disease management in the 21st century. London: TSO, 2001.

Department of Health. 2001c Valuing people: a new strategy for learning disability for the 21st century. Online: http://www.dh.gov.ukAvailable. July 2006.

Department of Health. 2004 Choosing health: making healthier choices easier. Online: www.dh.gov.uk/PublicationsAndStatistics/Publications/fs/en.

EAPN. 2003 European project on poverty indicators. Final report. Online: www.eapn.org.

Festinger L. Conflict, decision and dissonance. London: Tavistock, 1964.

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Foucault M. The birth of the clinic. London: Tavistock, 1973.

Gates R, editor. Learning disabilities: towards inclusion, 4th edn, Edinburgh: Churchill Livingstone, 2003.

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Health Education Board for Scotland. Team working. Edinburgh: HEBS, 2000.

Helman C. Culture, health and illness, 4th edn. Oxford: Butterworth-Heinemann, 2000.

Jones L. The social context of health and health care. Basingstoke: Macmillan Publishing, 1994.

JRF. 2003 Progress on poverty 1997–2003/4. JRF Findings Ref. 043. Online: www.jrf.org.uk.

Kennedy A. 2002 Sorted not screwed up. Report for the Aberdeen Foyer. Online: www.aberdeenfoyer.com/foyer_report.pdf.

Kerr J, editor. Community health promotion: challenges for action. London: Baillière Tindall/RCN, 2000.

Kiger AM. Teaching for health. Edinburgh: Churchill Livingstone, 1995.

Muir J, Sidey A, editors. Textbook of community children’s nursing. Edinburgh: Baillière Tindall/RCN, 2000.

Naidoo J, Wills J. Health promotion: foundations for practice, 2nd edn. Edinburgh: Baillière Tindall, 2000.

NHS Health Scotland. 2004 People with learning disability in Scotland. Health needs assessment report. Online: http://www.phis.org.uk. Available September 2006

Nursing and Midwifery Council. Code of professional conduct: standards for conduct, performance and ethics. London: NMC. 2004. Online: http://www.nmc-uk.org/aFramedisplay.aspx?documentID=201. Available July 2006.

Parsons T. The social system. London: Routledge, 1991.

Pencheon D, Guest C, Melzer D, et al, editors. Oxford handbook of public health practice. Oxford: Oxford University Press, 2001.

Perkins E, Simnett I, Wright L. Evidence-based health promotion. Chichester: Wiley, 1999.

Perrin EC, Gerrity PS. There’s a demon in your belly: children’s understanding of illness. Pediatrics. 1981;67(6):841-849.

Rogers CR. On becoming a person. London: Constable, 1951.

Scottish Executive. The same as you? A review of services for people with learning disabilities. Edinburgh: TSO, 2000.

Seedhouse D. Health: the foundations for achievement of potential, 2nd edn. Chichester: Wiley, 2001.

Seedhouse D. Total health promotion: mental health, rational fields and the quest for autonomy. Chichester: Wiley, 2002.

Tones K, Tilford S. Health promotion: effectiveness, efficiency and equity. Cheltenham: Nelson Thornes, 2001.

Townsend P, Davidson N, Whitehead M. Inequalities in health: the Black Report and the health divide. London: Penguin, 1992.

Tudor T. Mental health promotion. In: Norman I, Ryrie I, editors. The art and science of mental health nursing. Milton Keynes: Open University Press, 2004. Chapter 2.

WHO. Preamble to the constitution. Geneva: WHO, 1946.

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WHO. Regional health for all targets: Health21 health for all. Copenhagen: WHO, 1998.

Further reading

Helman C. Culture, health and illness, 4th edn. Oxford: Butterworth-Heinemann, 2000.

Naidoo J, Wills J. Health promotion: foundations for practice, 2nd edn. Edinburgh: Baillière Tindall, 2000.

Perkins E, Simnett I, Wright L. Evidence-based health promotion. Chichester: Wiley, 1999.

Seedhouse D. Health: the foundations for achievement of potential, 2nd edn. Chichester: Wiley, 2001.